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"I got so much on my plate": Understanding care discontinuity for HIV and HCV among formerly incarcerated persons
Lauren C Porter1, Alexander Testa2, Meghan Kozerra1
1Department of Criminology and Criminal Justice, University of Maryland, College Park, Maryland, USA.
Insights
Formerly incarcerated individuals face significant barriers to consistent HIV and Hepatitis C care. System navigation, housing instability, and mental health challenges impede their health and healthcare access.
Area of Science:
- Public Health
- Health Services Research
- Infectious Diseases
Background:
- Formerly incarcerated persons often experience significant health challenges, including high rates of HIV and Hepatitis C (HCV).
- Continuity of care is crucial for managing these chronic infections but is frequently disrupted post-release.
Purpose of the Study:
- To explore the barriers to care continuity for formerly incarcerated individuals diagnosed with HIV and/or HCV.
- To identify both internal and external factors impacting healthcare access and adherence.
Main Methods:
- Semi-structured interviews were conducted with 30 formerly incarcerated persons and 10 care providers in Baltimore, MD, and Washington, D.C.
- Data were collected through questionnaires and in-depth interviews, analyzed using qualitative coding methods.
Main Results:
- Common external barriers included difficulties with system navigation and unstable housing.
- Internal barriers comprised interconnected issues of mental health, substance use, and feelings of shame or denial.
- These challenges collectively threaten the health and healthcare engagement of this population.
Conclusions:
- Formerly incarcerated individuals with HIV/HCV face cumulative, intersecting, and reciprocal barriers to care.
- Addressing these multifaceted challenges is essential for improving health outcomes and healthcare continuity.
Objective:
To explore barriers to care continuity among formerly incarcerated persons with HIV and/or hepatitis C.
Data Sources And Study Setting:
We draw on data from semi-structured interviews conducted in 2018-2019 with 30 formerly incarcerated persons and 10 care providers. Data were collected across two clinics in Baltimore, Maryland, and Washington, D.C.
Study Design:
We recruited participants using a combination of nonprobability sampling techniques. Participants completed closed-ended questionnaires and took part in semi-structured interviews related to treatment barriers and incentives.
Data Collection/Extraction Methods:
Interviews were transcribed using Express Scribe software and transcriptions were open coded using NVivo 12 software. An iterative process was used to relate and build upon emergent themes in interviews.
Principal Findings:
Our study illuminates both internal and external barriers to care continuity. The most common external barriers were system navigation and housing instability. Internal barriers consisted of overlapping issues related to mental health, substance use, and feelings of shame and/or denial.
Conclusion:
An overarching theme is that formerly incarcerated persons with HIV and/or HCV are grappling with numerous challenges that can threaten their health and health care. These barriers are cumulative, intersecting, and reciprocal.
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