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Automatically Identifying Twitter Users for Interventions to Support Dementia Family Caregivers: Annotated Data Set
Ari Z Klein1, Arjun Magge1, Karen O'Connor1
1Department of Biostatistics, Epidemiology, and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, United States.
Researchers developed a method to identify Twitter users caring for family members with dementia. This enables large-scale analysis of caregiver experiences and targeted interventions for dementia support.
Area of Science:
- Computational linguistics
- Social media analysis
- Public health
Background:
- Over 6 million Americans have Alzheimer disease and related dementias, relying on informal caregivers.
- Existing interventions for family caregivers are often inaccessible.
- Family caregivers of people with dementia utilize Twitter to share experiences.
Purpose of the Study:
- To develop an annotated dataset for identifying Twitter users with family members suffering from dementia.
- To create benchmark classification models for this identification task.
Main Methods:
- Collected 10,733 tweets mentioning dementia keywords and familial relationships.
- Annotated tweets to identify users with family members suffering from dementia.
- Trained and evaluated machine learning models, including deep neural networks (BERT).
Main Results:
- A BERT-based deep neural network achieved an F1-score of 0.962 in identifying relevant tweets.
- The model identified 128,838 tweets from 74,290 users indicating a family member with dementia.
- This demonstrates a scalable approach to identifying this population on Twitter.
Conclusions:
- An annotated dataset and classification models can automatically identify Twitter users with family members suffering from dementia.
- This capability facilitates large-scale research into family caregiver experiences.
- It also enables direct targeting of interventions to support these caregivers.
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