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Experiencing Missing Contact With Professionals and Long Term Bereavement Outcome.

Emilie Stendahl Ramstad1, Laura Sabroe Thegen1, Mai-Britt Guldin2

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Family caregivers who missed contact with healthcare professionals after a loss experienced more grief and depression later. Early support for caregivers is crucial to prevent adverse psychological reactions.

Keywords:
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Area of Science:

  • Palliative Care
  • Bereavement Support
  • Mental Health in Caregiving

Background:

  • The Danish healthcare system offers palliative care, but family caregiver support is not systematically organized.
  • Family caregivers play a vital role but often face challenges, particularly after the patient's death.

Purpose of the Study:

  • To investigate the link between missing healthcare professional contact post-loss and long-term grief and depression in family caregivers.
  • To identify specific healthcare professionals whose lack of contact is most associated with adverse outcomes.

Main Methods:

  • A prospective, population-based survey of 3635 family caregivers was conducted.
  • Caregivers reported missed contact with general practitioners, home care nurses, hospital staff, and palliative care teams at six months post-bereavement.
  • Associations with prolonged grief and depression symptoms at three years were analyzed using multivariable logistic regression.

Main Results:

  • Missing contact with healthcare professionals six months post-bereavement was significantly linked to prolonged grief disorder and depression symptoms three years later.
  • Missing contact with the general practitioner showed the strongest association, with adjusted odds ratios of 4.0 for prolonged grief and 5.2 for depression.

Conclusions:

  • Lack of timely healthcare professional contact after bereavement is associated with negative psychological outcomes for family caregivers.
  • Proactive assessment of caregiver support needs early in the illness trajectory is recommended to prevent complications.
  • Targeted bereavement support can help mitigate adverse psychological reactions and improve long-term outcomes for family caregivers.