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Reinforcing Health Data Sharing through Data Democratization.

Yuhang Wang1, Bernd Blobel2,3,4, Bian Yang1

  • 1Department of Information Security and Communication Technology, Norwegian University of Science and Technology, 2815 Gjøvik, Norway.

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|September 23, 2022
PubMed
Summary
This summary is machine-generated.

We propose Health Democratization (HD), a novel health data sharing infrastructure. Our system uses a "reverse onus" mechanism to encourage trustworthy data access, fostering a democratic health data ecosystem.

Keywords:
data democratizationeHealthhealth data infrastructureprivacy-enhancing technologies

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Area of Science:

  • Health Informatics
  • Data Science
  • Computer Science

Background:

  • Current health data sharing faces structural and functional challenges.
  • Lack of democratic access hinders patient empowerment and research.
  • Existing infrastructures often lack mechanisms for incentivizing responsible data use.

Purpose of the Study:

  • To propose a health data sharing infrastructure promoting a democratic ecosystem.
  • To introduce the Health Democratization (HD) project and its core concept of data democratization.
  • To address challenges in seamless health data mobility across trust boundaries.

Main Methods:

  • Programmatic design of the Health Democratization (HD) platform.
  • Introduction of a "reverse onus" mechanism to incentivize creditable data accessing behaviors.
  • Focus on structural and functional aspects of the health data sharing infrastructure.

Main Results:

  • Elaboration of a programmatic design for the HD platform.
  • Demonstration of a novel "reverse onus" mechanism.
  • Identification of a promising approach for democratic health data sharing.

Conclusions:

  • The proposed Health Democratization (HD) infrastructure offers a viable solution for democratic health data sharing.
  • The "reverse onus" mechanism shows potential for incentivizing responsible data access.
  • This approach addresses key challenges in health data mobility and ecosystem democratization.