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Parental experiences of children with developmental dysplasia of the hip: a qualitative study

Wwes Theunissen1, M C van der Steen2,3, M R van Veen4

  • 1Department of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands wesley.theunissen@mmc.nl.

BMJ Open
|September 24, 2022
PubMed

Insights

Dutch parents of children with developmental dysplasia of the hip (DDH) experienced challenges with insufficient information and lack of overview during treatment. Optimizing information and support is crucial for improving the DDH patient journey.

Area of Science:

  • Pediatric Orthopedics
  • Developmental Dysplasia of the Hip (DDH)

Background:

  • Developmental dysplasia of the hip (DDH) is a common pediatric orthopedic condition.
  • Early diagnosis and treatment, often with a Pavlik harness, are crucial for optimal outcomes.

Purpose of the Study:

  • To explore the experiences of Dutch parents with children diagnosed with DDH.
  • To understand parental challenges during the diagnostic and treatment process in the first year of life.

Main Methods:

  • Qualitative study utilizing semistructured interviews.
  • Conducted between September and December 2020 with 22 parents of infants treated for DDH.
  • Data analyzed using qualitative content analysis.

Main Results:

  • Parents reported positive interactions with professionals but highlighted insufficient pre-hospital and unfiltered online information.
  • Key challenges included lack of patient journey overview, treatment concerns, parenting difficulties, and emotional burden.
  • Insecurity stemmed from inadequate information and an unclear treatment pathway.

Conclusions:

  • Parents were generally satisfied with hospital care but faced significant challenges with information and guidance.
  • Optimizing information provision and offering practical/emotional support are vital for DDH care.
  • Future interventions should address the parental experience of the DDH patient journey.
Abstract

Keywords:
hippaediatric orthopaedic & trauma surgerypaediatric orthopaedicspaediatrics

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