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Acceptability of a behavioural sleep intervention for autistic children: A qualitative evaluation of Sleeping Sound
Emily Pattison1, Ana Mantilla2, Matthew Fuller-Tyszkiewicz1
1School of Psychology, Faculty of Health, Deakin University, 1 Gheringhap Street, Geelong, Victoria, 3220, Australia.
Insights
Parents found the Sleeping Sound intervention acceptable for autistic children, with 95.5% recommending it. This behavioral sleep intervention showed effectiveness, though barriers like anxiety and facilitators like family support were noted.
Area of Science:
- Pediatric Sleep Medicine
- Autism Spectrum Disorder Interventions
- Behavioral Health
Background:
- Autistic children often experience sleep disturbances, impacting their well-being and family functioning.
- Brief behavioral sleep interventions show promise but require evaluation for parental acceptability.
Purpose of the Study:
- To assess parental perceptions of the acceptability of the "Sleeping Sound" brief behavioral sleep intervention for autistic children aged 5-13 years.
- To identify barriers and facilitators influencing the implementation of this sleep intervention within families.
Main Methods:
- Qualitative data were gathered from 82 families participating in a randomized controlled trial of the "Sleeping Sound" intervention.
- Thematic analysis was applied to consultation records and parent surveys, guided by the Theoretical Framework of Acceptability (TFA).
Main Results:
- Parents reported positive experiences and perceived the "Sleeping Sound" intervention as appropriate and effective.
- Key barriers included child/parent anxiety and family circumstances, while facilitators involved family support and consistent strategy use.
- Over 95% of parents indicated they would recommend the intervention to others.
Conclusions:
- The "Sleeping Sound" intervention is largely acceptable to parents of autistic children.
- Findings provide valuable insights for refining the intervention to enhance future implementation and effectiveness.
Objective:
The aim of the current study was to evaluate parental perceptions of the acceptability of a brief behavioural sleep intervention for autistic children (aged 5-13 years) using the Theoretical Framework of Acceptability (TFA).
Methods:
Qualitative data were collected during a large randomised controlled trial evaluating the efficacy of the Sleeping Sound intervention: 123 families were randomised to the intervention group, of which 115 (93%) completed at least one intervention session and 82 (67%) provided qualitative evaluation data in the 3-month follow-up survey. Consultation records from intervention sessions and parent surveys were qualitatively analysed post hoc using a hybrid approach to thematic analysis.
Results:
Findings were categorised under the seven themes of the TFA (affective attitude, burden, ethicality, intervention coherence, opportunity costs, perceived effectiveness, self-efficacy) in addition to three themes that were defined following inductive and deductive coding (barriers to implementation, facilitators to implementation, suggestions for improvement). Participants spoke positively about their experience participating in the intervention and perceived the intervention to be appropriate and effective. Most parents (95.5%) reported that they would recommend the Sleeping Sound intervention to other families of autistic children. Barriers to implementation included child and parent anxiety, child health problems, parental preferences, family circumstances, and other (e.g., school holidays). Facilitators to implementation included family support and consistency with strategies.
Conclusions:
The Sleeping Sound intervention was considered acceptable to parents of autistic children as evidenced by largely positive feedback regarding their experience. The results highlighted areas for improvement which can be used to inform future iterations of the intervention.
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