An interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2) -...

Area of Science:

• Neurology
• Health Informatics
• Patient Education

Background:

• Intravenous corticosteroids are standard for acute multiple sclerosis relapses despite limited long-term evidence.
• Oral corticosteroids offer equivalent effectiveness with lower costs.
• There's a need for evidence-based patient information and shared decision-making in multiple sclerosis relapse management.

Purpose of the Study:

• To develop a web-based program for multiple sclerosis relapse management.
• To evaluate the feasibility and acceptability of this digital intervention for patients and experts.

Main Methods:

• The study followed the UK Medical Research Council Framework for complex interventions.
• Phase 1: Development of an interactive web-based relapse management program.
• Phase 2: Feasibility and pilot testing with multiple sclerosis patients and experts using questionnaires and interviews.

Main Results:

• Feasibility testing showed good practicability and acceptance of the program content.
• Pilot testing with patients and experts confirmed good user-friendliness and acceptance.
• The program underwent final revisions based on user feedback.

Conclusions:

• The web-based relapse management program is feasible, user-friendly, and well-accepted.
• The program aims to enhance patient autonomy and participation in multiple sclerosis relapse care.
• The intervention is currently undergoing randomized controlled trial evaluation (NCT04233970).