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Area of Science:

  • Pediatric healthcare research
  • Clinical decision-making
  • Health services research

Background:

  • Shared decision-making (SDM) is crucial in pediatric care.
  • Developing evidence-based recommendations for pediatric SDM is essential.

Purpose of the Study:

  • To develop comprehensive recommendations for pediatric shared decision-making (SDM).
  • To differentiate recommendations for simple versus complex pediatric decisions.

Main Methods:

  • A 2020-2021 Delphi study involved an international panel of 21 experts (clinicians, researchers, parents).
  • Semistructured interviews and content analysis identified key SDM processes.
  • A two-round Likert scale questionnaire assessed processes for simple and complex decisions.

Main Results:

  • 79 recommendations were generated, comprising 29 fundamental and 14 additional processes for complex decisions.
  • Personalization of the decision-making process emerged as a critical theme.
  • Recommendations include assessing family/child roles, directiveness, values, preferences, and goals.

Conclusions:

  • An international expert panel established recommendations for pediatric SDM in simple and complex decisions.
  • The developed recommendations underscore the importance of personalized care in pediatric decision-making.