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Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Taylor R House1, Aaron Wightman2,3,4
1Division of Pediatric Nephrology, Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin.
Insights
Paediatric palliative care enhances life participation for children with advanced kidney disease. Integrating family perspectives and novel palliative interventions improves care and well-being for these children.
Area of Science:
- Pediatric Nephrology
- Palliative Care
- Child Health
Background:
- Advanced kidney disease significantly impacts children and families.
- Palliative care offers a holistic, family-centered approach to improve quality of life.
- Current utilization of palliative care in pediatric nephrology is suboptimal.
Conclusions:
- Children with advanced kidney disease benefit from integrating their values and perspectives.
- Palliative interventions can facilitate greater life participation for these children.
- Further research is needed to optimize palliative care in pediatric nephrology.
Purpose Of Review:
Paediatric kidney disease results in considerable burden on children and their families. Paediatric palliative care is a holistic, family-centred care approach intended to enable flourishing and address the many impediments to life participation which advanced kidney disease can impose. To date, palliative care resources have been underutilized in paediatric nephrology. This review will highlight recent literature targeting the engagement and life participation of children with advanced kidney disease through implementation of novel palliative care approaches and propose directions for future research.
Recent Findings:
Children with advanced kidney disease and their families highly value incorporation of their perspectives, particularly on life participation, within care plan development; but what it means to participate in life can be variable, and clinicians need improved tools to ascertain and incorporate these perspectives. Novel palliative care interventions developed for application in comparable disease states offer potential opportunities for paediatric nephrologists to support this goal.
Summary:
Children with advanced kidney disease and their families will benefit from incorporation of their perspectives and values, facilitated by palliative interventions.
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