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Public Attitude towards Biobanking: An Italian University Survey
Chiara Aleni1, Carmela Rinaldi2,3,4, Valentina Bettio3,4
1Department of Sustainable Development and Ecological Transition, University of Piemonte Orientale, 13100 Vercelli, Italy.
International Journal of Environmental Research and Public Health
|October 27, 2022
Summary
Most participants know about biobanks and are willing to donate samples and data for research. However, concerns about data confidentiality and commercial use need to be addressed to build trust in biobanking.
Area of Science:
- Biomedical Research
- Public Health
- Genomics
Background:
- Biobanks are crucial for precision medicine, collecting biospecimens and health data.
- Public trust, knowledge, and benefit sharing influence biobank participation.
- Understanding public perceptions is key to improving biobank engagement.
Purpose of the Study:
- To assess knowledge and perceptions of biobanking among university students and personnel.
- To identify factors influencing willingness to participate in biobanking.
Main Methods:
- An online questionnaire was distributed to 17,758 individuals at the University of Piemonte Orientale.
- 1521 participants (9.3%) completed the survey on biobank awareness and willingness to contribute.
Main Results:
- 65% were aware of biobanks and their functions.
- 76.3% were willing to donate biospecimens, and 67.3% to share health/lifestyle data.
- Concerns included data confidentiality (25.6%) and commercial use (25.0%).
Conclusions:
- Participants recognize biobanks' research importance and show willingness to contribute.
- Addressing concerns about data confidentiality and commercialization is essential for enhancing trust and participation.
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