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Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate
Sonya Hiremath1, Montserrat Doukrou2, Halina Flannery3
1Victoria Hospital Kirkaldy, NHS Fife, Kirkcaldy KY2 5AH, UK.
Insights
A hospital rehabilitation program improved wellbeing in 85% of children and young people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The study offers insights for ME/CFS services and future treatment trials.
Area of Science:
- Pediatric Rehabilitation
- Chronic Illness Management
- Public Health
Background:
- Limited data exists on treatment and outcomes for pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
- This study addresses the need for understanding moderate to severe ME/CFS outcomes in children and young people (CYP).
Approach:
- Retrospective review of medical records for 27 CYP undergoing ward-based treatment in 2015.
- Assessment of progress in mobility, education, sleep, and social/recreational activities.
Key Points:
- 85% of CYP (23/27) showed improvement in at least one wellbeing domain.
- Significant improvements were noted in physical ability (70%), education access (65%), sleep (50%), and social/recreational activities (59%).
Conclusions:
- A multidisciplinary, hospital-based rehabilitation program positively impacted wellbeing in most CYP with moderate to severe ME/CFS.
- Findings provide a baseline for evaluating care models and inform future ME/CFS management strategies, potentially including Post-COVID Syndrome patients.
Purpose Of The Study:
There is limited published data on treatment or outcomes of children and young people (CYP) with moderate or severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Here, we describe outcomes of moderate and severe ME/CFS in CYP treated in a tertiary adolescent service. This information is useful when planning services for CYP and families affected by moderate/severe ME/CFS and to guide future management trials and commissioning decisions.
Study Design:
A retrospective review was conducted of medical records of the 27 CYP who received ward-based treatment in 2015. Notes were retrospectively reviewed to assess progress in four markers of wellbeing over the period of treatment: (i) mobility, (ii) education, (iii) sleep and (iv) involvement in social/recreational activities.
Results:
A total of 23/27 (85%) showed improvement in one or more domains over their period of ward-based therapy. 19/27 (70%) of patients showed improvement in physical ability. In 15/23 patients (65%), there was an improvement in ability to access education, in 12/24 (50%) sleep improved, and 16/27 (59%) demonstrated an improvement in socialising/ability perform recreational activities.
Conclusion/Implications:
A multidisciplinary hospital-based rehabilitation programme for moderate and severe ME/CFS was associated with improvement in at least one area of wellbeing in 85% of the CYP we reviewed. These data may be used as a baseline to evaluate the impact of other models of delivering care for this patient group. It may be useful when considering other groups such as those affected by Post-COVID Syndrome.
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