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Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental
Genevieve Currie1,2, Brittany Finlay1, Ashish Seth1
1School of Public Policy, University of Calgary, Calgary, AB, Canada.
Insights
The COVID-19 pandemic disrupted essential services for children with neurodevelopmental disorders (NDDs), impacting family mental health. Inclusive emergency planning is crucial to support these families during crises.
Area of Science:
- Public Health
- Child Development
- Disability Studies
Background:
- The COVID-19 pandemic and associated restrictions created significant challenges for children with neurodevelopmental disorders (NDDs) and their families.
- Limited access to essential supports and services impacted the health and well-being of children with NDDs.
Purpose of the Study:
- To understand the impact of public health measures on the mental health of parents with children with NDDs.
- To inform public health policies that are responsive to the needs of families with NDDs.
Main Methods:
- Interpretive descriptive design was employed for data collection and analysis.
- Forty caregivers of children with NDDs were interviewed about their experiences during pandemic restrictions.
Main Results:
- Generic policy measures led to gaps in social support systems and mental health challenges for children and parents.
- Key themes included lack of social networks, reduced access to health/social supports, family tension, and negative mental health impacts.
Conclusions:
- Emergency preparedness requires a disability-inclusive approach with adequate resources for family support.
- Families identified specific supports needed to mitigate pandemic disruptions and improve recovery.
Background:
The global pandemic and subsequent denials, delays, and disruptions in essential daily activities created significant challenges for children with neurodevelopmental disorders (NDDs) and their parents. Public health restrictions during the COVID-19 pandemic limited access to supports and services required by children with NDDs to maintain their health and well-being.
Objective:
This study sought to understand the impacts of these public health measures and restrictions on mental health from the perspective of parents with children with NDDs to inform pathways for public health policies responsive to the needs of this population.
Method:
Interpretive descriptive design was used to guide data collection and data analysis. Forty caregivers were interviewed about their experience with pandemic restrictions.
Findings:
Generic policy measures contributed to many gaps in families' social support systems and contributed to mental health challenges for children and their parents. Four themes emerged: 1) lack of social networks and activities, 2) lack of access to health and social supports, 3) tension in the family unit, and 4) impact on mental health for children and their parents.
Recommendations:
Emergency preparedness planning requires a disability inclusive approach allocating resources for family supports in the home and community. Families identified supports to minimize further pandemic disruptions and enhance recovery.
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