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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
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Comparing international dementia research priorities-Systematic review
Monica Logan1, Stephanie Leitch1, Zainab Bosakh1
1School of Medicine, University of Glasgow, Glasgow, UK.
International Journal of Geriatric Psychiatry
|November 3, 2022
Summary
Setting research priorities for dementia involves diverse stakeholders. While caregiver support is key globally, regional differences exist, highlighting the need for context-specific dementia research agendas.
Area of Science:
- Neuroscience and Public Health
- Healthcare Systems Research
- Research Priority Setting Methodologies
Background:
- Research priority setting is crucial for guiding funding and policy in dementia research.
- International healthcare systems engage stakeholders to identify pressing research questions.
- Understanding global dementia research priorities informs future scientific endeavors.
Purpose of the Study:
- To compare published dementia research priority setting exercises across international healthcare systems.
- To identify common themes and variations in dementia research priorities globally.
- To assess the methodological and reporting quality of dementia priority setting exercises.
Main Methods:
- Systematic search of four international electronic databases (2010-2021).
- Thematic analysis of extracted priorities from 10 selected studies (1179 participants, 147 priorities).
- Evaluation using the Nine Common Themes of Good Practice (9CTGP) and REPRISE checklists.
Main Results:
- Caregivers (25%) and support (24%) were the most frequent priority themes.
- Inclusiveness, implementation, and evaluation were common issues across studies.
- Geographical variations observed: awareness/education prioritized in low-middle income countries; caregivers/support in high income countries.
Conclusions:
- Key dementia research priorities show some commonality but differ based on regional context.
- Significant scope exists for improving the process and reporting of research priority setting.
- Dementia research priorities identified in one healthcare setting may not be universally applicable.
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