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Identifying Components of Autism Friendly Health Care: An Exploratory Study Using a Modified Delphi Method
Belinda O'Hagan1, Shari B Krauss1, Alexander J Friedman1
1Boston Medical Center, Boston, MA.
Developing Autism Friendly healthcare requires environmental changes like longer appointments and comprehensive staff training. These improvements aim to enhance the healthcare experience for autistic individuals, addressing key barriers to satisfaction.
Area of Science:
- Healthcare accessibility and patient experience research.
- Autism spectrum disorder (ASD) and healthcare delivery.
- Development of best practice standards in medicine.
Background:
- Autistic individuals often report lower satisfaction with healthcare services.
- A lack of established "best practice" standards for caring for autistic patients exists.
- Healthcare settings frequently present barriers for autistic individuals.
Purpose of the Study:
- To identify key features of an Autism Friendly healthcare practice.
- To establish consensus on essential components for improving healthcare for autistic individuals.
- To inform the development of best practices in autism healthcare.
Main Methods:
- A modified 3-round Delphi method was employed to reach consensus.
- Statements regarding Autism Friendly healthcare components were evaluated by professionals and stakeholders.
- Surveys were used to score and rank the importance of various practice features.
Main Results:
- Environmental and operational modifications, such as extended appointment durations, were highly ranked.
- Comprehensive staff training to better support autistic patients emerged as a critical factor.
- Key themes included the need for sensory-friendly environments and communication adaptations.
Conclusions:
- The study identified crucial elements for creating Autism Friendly healthcare environments.
- Findings highlight the importance of staff training and environmental adjustments.
- Results provide a foundation for healthcare organizations to prioritize autism-friendly initiatives.
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