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Updated: Aug 21, 2025
Author Spotlight: Enhancing Upper Limb Rehabilitation in Stroke Patients Through Advanced Robotic and Neuromodulation Technologies
Published on: October 11, 2024
Patients' experience of and participation in a stroke self-management programme, My Life After Stroke (MLAS): a
Emily Grace Blatchford1, Maria Raisa Jessica Aquino2, Julie Grant3
1Primary Care Unit, University of Cambridge Primary Care Unit, Cambridge, UK egb39@cam.ac.uk.
Objective:
A self-management programme, My Life After Stroke (MLAS), was developed to support stroke survivors. This evaluation reports patients' experience.
Design:
Multimethod, involving interviews and questionnaires.
Setting:
23 general practices in the intervention arm of a cluster randomised controlled trial in East of England and East Midlands, UK.
Participants:
People on the stroke registers of participating general practices were invited to attend an MLAS programme.
Interventions:
MLAS comprises one-to-one and group-based sessions to promote independence, confidence and hope.
Primary And Secondary Outcome Measures:
The primary outcome was uptake of the programme. Participants who declined MLAS were sent a questionnaire to ascertain why. Attendees of four programmes completed evaluation forms. Attendees and non-attendees of MLAS were interviewed. Ad-hoc email conversations with the lead author were reviewed. Thematic analysis was used for qualitative data.
Results:
141/420 (34%) participants (mean age 71) attended an MLAS programme and 103 (73%) completed 1. 64/228 (28%) participants who declined MLAS gave reasons as: good recovery, ongoing health issues, logistical issues and inappropriate. Nearly all attendees who completed questionnaires felt that process criteria such as talking about their stroke and outcomes such as developing a strong understanding of stroke had been achieved.
Conclusions:
MLAS was a positive experience for participants but many stroke survivors did not feel it was appropriate for them. Participation in self-management programmes after stroke might be improved by offering them sooner after the stroke and providing a range of delivery options beyond group-based, face-to-face learning.
Trial Registration Number:
NCT03353519, NIH.
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