Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review
Related Experiment Video
Updated: Aug 21, 2025

Oral Health Assessment by Lay Personnel for Older Adults
Published on: February 2, 2020
Winnie Tsang1, David Oliver1, Paraskevi Triantafyllopoulou1
1School of Social Policy, Sociology and Social Research, Tizard Centre, University of Kent, Canterbury, UK.
Background:
Adults with intellectual disabilities are an at-risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia.
Method:
A systematic review was carried out using 10 databases and papers from up to March year 2021.
Results:
Two instruments were identified and examined. The QoL in late-stage dementia, which showed evidence of good levels of internal consistency, intra-rater reliability, test-retest reliability, and convergent validity. The Dementia Quality of Life - proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population.
Conclusion:
It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes.
More Related Videos
11:21Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
04:13Using a Real-Time Locating System to Measure Walking Activity Associated with Wandering Behaviors Among Institutionalized Older Adults
Published on: February 8, 2019
Related Concept Videos
Intellectual Disability
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities
Dimensions of Health and Illness
Measures of Intelligence
Validity refers to how well a test measures what it claims to measure. An intelligence test should accurately assess intelligence rather than another characteristic, like anxiety. Criterion validity is one way to evaluate this;...
Dementia
The progression of dementia is generally gradual....
Cognitive Development During Adulthood