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Palliative Care Needs Assessment for Pediatric Complex Care Providers.
P Galen DiDomizio1, Morgan M Millar2, Lenora Olson3
1Department of Pediatrics (P .D.), Medical College of Wisconsin, Milwaukee, Wisconsin.
Journal of Pain and Symptom Management
|November 17, 2022
Summary
Pediatric complex care teams face challenges in symptom management and care coordination. Collaboration with palliative care can enhance support for children with medical complexity (CMC).
Area of Science:
- Pediatric Healthcare
- Complex Care
- Palliative Care
Background:
- Children with medical complexity (CMC) often receive care from both complex care and palliative care pediatric teams.
- No prior research has investigated the relationship or collaboration between these two disciplines.
Purpose of the Study:
- To investigate challenges faced by complex care programs in managing children with medical complexity (CMC).
- To explore if collaboration with pediatric palliative care or additional training can address these challenges.
Main Methods:
- An anonymous online survey was distributed to medical providers caring for CMC.
- Participants were recruited via a Complex Care listerv.
- Data were analyzed using descriptive statistics.
Main Results:
- 85 providers (87.1% physicians, 12.0% nurse practitioners) completed the survey.
- Key challenges identified include symptom management, goals of care, advance care planning, and care coordination.
- A majority of providers reported benefiting from palliative care consultation in these areas.
Conclusions:
- The field of pediatric complex care presents numerous challenges for providers.
- Palliative care expertise aligns with areas where complex care teams face difficulties.
- Increased palliative care involvement can benefit complex care teams and patients through specialized expertise.
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