Facilitating the transition from paediatric to adult care in endocrinology: a focus on growth disorders

Janaki D Vakharia1,2, Takara L Stanley1,2

  • 1Division of Pediatric Endocrinology, Department of Pediatrics, Mass-General Hospital for Children and Harvard Medical School.

Insights

Smooth healthcare transition (HCT) for adolescents with childhood-onset growth disorders (COGD) is crucial. This review outlines a three-stage HCT process to prevent care interruptions and improve long-term disease management.

Area of Science:

  • Endocrinology
  • Adolescent Medicine
  • Healthcare Management

Background:

  • Childhood-onset growth disorders (COGD) often require lifelong management, necessitating a critical transition from pediatric to adult healthcare systems.
  • The transition period poses a significant risk for care discontinuity, potentially leading to adverse health outcomes in young adults.

Approach:

  • This review synthesizes current research on best practices for healthcare transition (HCT).
  • It details a three-stage model for HCT: preparation in pediatrics, transfer to adult care, and integration into adult services.
  • The approach includes disease-specific considerations for endocrinologists and resources for assessing transition readiness.

Key Points:

  • Stage 1 involves early adolescent preparation, focusing on medical knowledge and self-management skills.
  • Stage 2 emphasizes facilitated transfer through warm hand-offs and joint visits.
  • Stage 3 focuses on sustained care within the adult setting, ideally with multidisciplinary support.

Conclusions:

  • Implementing a structured, multi-stage HCT process is essential for young adults with COGD.
  • Effective transition planning mitigates risks of care interruption and improves long-term health outcomes.
  • Collaboration between pediatric and adult care providers, alongside patient education, is key to successful HCT.
Abstract

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