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Facilitating the transition from paediatric to adult care in endocrinology: a focus on growth disorders
Janaki D Vakharia1,2, Takara L Stanley1,2
1Division of Pediatric Endocrinology, Department of Pediatrics, Mass-General Hospital for Children and Harvard Medical School.
Insights
Smooth healthcare transition (HCT) for adolescents with childhood-onset growth disorders (COGD) is crucial. This review outlines a three-stage HCT process to prevent care interruptions and improve long-term disease management.
Area of Science:
- Endocrinology
- Adolescent Medicine
- Healthcare Management
Background:
- Childhood-onset growth disorders (COGD) often require lifelong management, necessitating a critical transition from pediatric to adult healthcare systems.
- The transition period poses a significant risk for care discontinuity, potentially leading to adverse health outcomes in young adults.
Approach:
- This review synthesizes current research on best practices for healthcare transition (HCT).
- It details a three-stage model for HCT: preparation in pediatrics, transfer to adult care, and integration into adult services.
- The approach includes disease-specific considerations for endocrinologists and resources for assessing transition readiness.
Key Points:
- Stage 1 involves early adolescent preparation, focusing on medical knowledge and self-management skills.
- Stage 2 emphasizes facilitated transfer through warm hand-offs and joint visits.
- Stage 3 focuses on sustained care within the adult setting, ideally with multidisciplinary support.
Conclusions:
- Implementing a structured, multi-stage HCT process is essential for young adults with COGD.
- Effective transition planning mitigates risks of care interruption and improves long-term health outcomes.
- Collaboration between pediatric and adult care providers, alongside patient education, is key to successful HCT.
Purpose Of Review:
Many childhood-onset growth disorders (COGDs) require continued care into adulthood, and the time of transition between paediatric and adult providers carries a high risk for interruptions in medical care and consequent worsening of disease management.
Recent Findings:
Research into best practices for healthcare transition (HCT) describes three distinct stages. Stage 1, transition planning and preparation, begins in the paediatric setting during early adolescence and ensures that the patient has adequate medical knowledge, self-management skills, and readiness for transition. Stage 2, transfer to adult care, occurs with variable timing depending on transition readiness and is best facilitated by warm hand-offs and, when possible, joint visits with the paediatric and adult provider(s) and/or involvement of a care coordinator. Stage 3, intake and integration into adult care, entails retaining the patient in the adult setting, ideally through the involvement of a multidisciplinary approach.
Summary:
This review covers general principles for ensuring smooth transition of adolescents and young adults (AYA) with COGD, disease-specific medical considerations for paediatric and adult endocrinologists during the transition process, and general and disease-specific resources to assess transition readiness and facilitate transition.
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