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Published on: February 16, 2011
Parent Perspectives on Sharing Pediatric Hospitalization Clinical Notes.
Michelle M Kelly1, Peter L T Hoonakker2, Carrie L Nacht3
1Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin.
Parents found real-time access to their child's clinical notes beneficial, improving communication and knowledge, but also noted challenges. Strategies for optimizing this patient-centered care approach were identified.
Area of Science:
- Pediatric Healthcare
- Health Informatics
- Patient Engagement
Background:
- Federal mandates require hospitals to provide free online access to physician clinical notes.
- Understanding parent perceptions of real-time note access is crucial for implementation.
Purpose of the Study:
- Identify parent perceptions of benefits and challenges of real-time clinical note access during pediatric hospitalization.
- Determine strategies to optimize bedside note-sharing.
Main Methods:
- Qualitative study involving parents of children under 12 admitted to a pediatric hospitalist service.
- Parents accessed notes via bedside tablet; semi-structured interviews were conducted upon discharge.
- Thematic analysis of transcribed interviews was performed by multiple researchers.
Main Results:
- Parents reported 6 benefits: improved understanding of care plans, enhanced communication, empowerment, autonomy, and positive emotions.
- Challenges included confusion, hindered communication, note content issues, and negative emotions.
- Parents recommended preemptive communication, optimized release processes, parent-friendly templates, and informational resources.
Conclusions:
- Findings offer a framework for implementing note-sharing with parents during hospitalization.
- Results are vital for hospitals complying with regulations and for research on information transparency in inpatient settings.
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