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The Compassionate Communities Connectors model for end-of-life care: implementation and evaluation.

Samar M Aoun1, Robyn Richmond2, Kerry Gunton3

  • 1The University of Western Australia, Perth, WA, AustraliaPerron Institute for Neurological and Translational Science, Perth, WA, AustraliaLa Trobe University, Melbourne, VIC, Australia.

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Summary

Community volunteers improved social connectedness for patients needing palliative care. This model enhanced support networks, reduced isolation, and integrated formal and informal care, becoming standard practice.

Keywords:
Caring Helperschronic diseasecommunity Connectorscommunity networkscompassionate communitiesend-of-life carepalliative careprogramme evaluationsocial and practical needssocial connectednessvolunteers

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Area of Science:

  • Community health
  • Palliative care
  • Social determinants of health

Background:

  • Palliative care needs often extend beyond medical treatment, encompassing social and practical support.
  • Existing formal services may not fully address the complex needs of individuals with advanced life-limiting illnesses, particularly those living alone or in rural areas.
  • Community-based initiatives can play a crucial role in augmenting formal care systems.

Purpose of the Study:

  • To develop, implement, and evaluate a novel care model utilizing community volunteers (Compassionate Communities Connectors).
  • To assess the impact of this model on social connectedness and unmet needs of patients receiving palliative care.
  • To enhance supportive networks for individuals with advanced life-limiting illnesses.

Main Methods:

  • A pilot project employing a mixed-methods, prospective cohort longitudinal design with pre- and post-intervention measurements.
  • Inclusion of primary outcomes focused on social connectedness and secondary outcomes assessing practical/social needs, social network support, and overall social wellbeing.
  • Data collection involved patients receiving support from trained community volunteers.

Main Results:

  • Significant improvements in social connectedness were observed, including reduced social isolation and enhanced coping with daily activities.
  • A two-fold increase in supportive networks was documented, indicating greater community engagement.
  • The program effectively addressed social and practical needs unmet by formal services, especially for isolated or rural populations.

Conclusions:

  • The Compassionate Communities Connectors model demonstrates successful integration of formal and informal care networks.
  • The initiative achieved measurable positive outcomes, leading to its adoption as standard practice within the health service.
  • The project provides a scalable model for community capacity building and replication in diverse settings.