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Project UPLIFT: Adoption and implementation experiences of an epilepsy self-management program.
Robin E McGee1, Archna Patel1, Emily M Drzymalla1
1Department of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University, 1518 Clifton Road, Atlanta, GA 30322, United States.
Project UPLIFT, an epilepsy self-management program, shows promise in treating depression. Implementation requires addressing challenges like recruitment and funding to ensure continued success for people with epilepsy (PWE).
Area of Science:
- Epilepsy self-management
- Telehealth interventions
- Mental health in chronic conditions
Background:
- Project UPLIFT is an evidence-based, 8-session group telehealth program designed to prevent and treat depression in people with epilepsy (PWE).
- Since 2012, community providers have been trained to deliver UPLIFT, but limited research exists on its adoption, implementation, and maintenance.
Purpose of the Study:
- To understand the adoption, implementation, and practice-based maintenance experiences of UPLIFT program adopters.
- To identify facilitators and challenges in delivering the UPLIFT program to people with epilepsy.
Main Methods:
- A cross-sectional online survey was distributed to 120 UPLIFT program adopters.
- The survey used closed- and open-ended questions based on the RE-AIM model to assess reach, effectiveness, adoption, implementation, and maintenance.
- Quantitative data were analyzed using frequencies and cross-tabs; qualitative data were analyzed thematically.
Main Results:
- 34% (41 respondents) completed the survey, representing diverse organizations.
- Key facilitators included participant interest, training, and organizational support; recruitment was the main challenge.
- Despite funding challenges, most implementers found UPLIFT effective and plan to continue offering it.
Conclusions:
- Implementation surveys offer valuable insights into program adoption and impact for dissemination trainees.
- Program champions, strong partnerships, and sustained funding are crucial for successful implementation and maintenance.
- Refining implementation support, including referral systems and ongoing training, can enhance program adoption and long-term success.
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