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Mapping care provision for type 1 diabetes throughout Australia: a protocol for a mixed-method study
Ann Carrigan1, Rebecca Lake1, Sophia Zoungas2,3
1Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.
Insights
This study protocol outlines a plan to map Type 1 diabetes (T1D) care models for Australian youth. It aims to identify gaps and needs in T1D management from both provider and patient perspectives.
Area of Science:
- Pediatric Endocrinology
- Autoimmune Disease Management
- Healthcare Delivery Systems
Background:
- Type 1 diabetes (T1D) is a chronic autoimmune condition requiring lifelong, complex care.
- Current T1D management in Australia shows consistently poor glycaemic control, leading to severe health complications.
- Existing T1D models of care lack comprehensive understanding regarding components, implementation, and outcomes.
Purpose of the Study:
- To develop a study protocol for mapping existing T1D care models in Australia.
- To identify care delivery gaps and needs from the perspectives of healthcare providers, children, young adults, and families.
- To inform the development of effective and sustainable T1D care models for pediatric populations.
Main Methods:
- A mixed-method approach combining qualitative and quantitative data collection.
- Surveys and interviews with healthcare providers and consumers (children, young adults, families).
- Thematic and statistical analysis to synthesize findings and identify care model characteristics and gaps.
Main Results:
- This section will present the findings once the study is completed.
- Anticipated results include a detailed map of current T1D care models.
- Identification of specific gaps and needs in T1D care delivery across metropolitan, rural, and remote Australia.
Conclusions:
- This research will provide crucial insights into optimizing T1D care for children and young adults.
- Findings will guide the development of patient-centered, developmentally appropriate, and sustainable T1D management strategies.
- Improved T1D care models have the potential to enhance glycaemic control and reduce long-term health complications.
Introduction:
Type 1 diabetes (T1D) is a chronic and incurable autoimmune disease, diagnosed in early childhood and managed initially in paediatric healthcare services. In many countries, including Australia, national audit data suggest that management and care of T1D, and consequently glycaemic control, are consistently poor. This can lead to adverse outcomes such as cardiovascular disease and nephropathy. T1D treatment is complex, multidisciplinary, multiagency and life-long and should involve patient-centred, developmentally appropriate care. Although an emerging body of literature describes T1D models of care, their components, implementation determinants and associated outcomes are poorly understood.
Objectives:
To provide a study protocol to describe methods to map existing models of care for children and young adults living with T1D. It will identify the gaps and needs in care delivery as viewed by healthcare providers and by children, young people and their families accessing care in metropolitan and rural or remote regions throughout Australia.
Methods And Analysis:
A mixed-method study that includes provider and consumer-specific surveys and interviews about current T1D care provisions. Data will be analysed thematically (qualitative) and statistically (quantitative) and synthesised to describe the key characteristics of effective and sustainable models of care for T1D and to identify gaps.
Ethics And Dissemination:
Ethics approval was granted by the Macquarie University Human Research Ethics Committee in July 2022 (#520221154439676). Results will be disseminated via publication in peer-reviewed journals and at relevant conferences.
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