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Mapping care provision for type 1 diabetes throughout Australia: a protocol for a mixed-method study.

Ann Carrigan1, Rebecca Lake1, Sophia Zoungas2,3

  • 1Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia.

BMJ Open
|December 16, 2022
PubMed
Summary

This study protocol outlines a plan to map Type 1 diabetes (T1D) care models for Australian youth. It aims to identify gaps and needs in T1D management from both provider and patient perspectives.

Keywords:
general endocrinologypaediatric endocrinologyquality in health care

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Area of Science:

  • Pediatric Endocrinology
  • Autoimmune Disease Management
  • Healthcare Delivery Systems

Background:

  • Type 1 diabetes (T1D) is a chronic autoimmune condition requiring lifelong, complex care.
  • Current T1D management in Australia shows consistently poor glycaemic control, leading to severe health complications.
  • Existing T1D models of care lack comprehensive understanding regarding components, implementation, and outcomes.

Purpose of the Study:

  • To develop a study protocol for mapping existing T1D care models in Australia.
  • To identify care delivery gaps and needs from the perspectives of healthcare providers, children, young adults, and families.
  • To inform the development of effective and sustainable T1D care models for pediatric populations.

Main Methods:

  • A mixed-method approach combining qualitative and quantitative data collection.
  • Surveys and interviews with healthcare providers and consumers (children, young adults, families).
  • Thematic and statistical analysis to synthesize findings and identify care model characteristics and gaps.

Main Results:

  • This section will present the findings once the study is completed.
  • Anticipated results include a detailed map of current T1D care models.
  • Identification of specific gaps and needs in T1D care delivery across metropolitan, rural, and remote Australia.

Conclusions:

  • This research will provide crucial insights into optimizing T1D care for children and young adults.
  • Findings will guide the development of patient-centered, developmentally appropriate, and sustainable T1D management strategies.
  • Improved T1D care models have the potential to enhance glycaemic control and reduce long-term health complications.