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Thalassaemia - part 2: the patient perspective
Brasanyaa Raveendran1, Mohammed Dungarwalla2
1Dental Core Trainee 1 in Restorative Dentistry and General Duties, Barts Health Trust, Royal London Dental Hospital, Turner Street, Whitechapel, London, E1 1DE, UK. brasanyaa@outlook.com.
British Dental Journal
|December 16, 2022
Summary
This study explores the dental care experiences of beta-major thalassaemia patients. It guides dentists on managing thalassaemia implications and improving patient confidence through better primary dental services and social media integration.
Area of Science:
- Hematology
- Public Health
- Dental Medicine
Background:
- Thalassaemia presents unique challenges for patients, impacting their overall health journey.
- Dental care for thalassaemia patients requires specialized knowledge often lacking in primary care settings.
- Recent literature updates are crucial for healthcare providers managing complex genetic disorders.
Purpose of the Study:
- To assess patient-reported outcomes of dental care received by individuals with beta-major thalassaemia.
- To investigate the role of social media within the thalassaemia community and its effect on patient self-confidence.
- To propose management protocols for primary dental care and referral criteria for secondary care.
Main Methods:
- A focus group with UK Thalassaemia Society members suffering from beta-major thalassaemia.
- Semi-structured interviews were conducted to gather patient feedback and experiences.
- Participant consent was obtained, and data were collected following ethical review.
Main Results:
- Patients provided feedback on the quality of primary dental services.
- The influence of social media on patient self-confidence was evaluated.
- Key areas for improving dental care protocols were identified.
Conclusions:
- There is a need for enhanced primary dental care protocols for thalassaemia patients.
- Social media engagement can positively impact self-confidence within the thalassaemia community.
- Clear referral pathways are essential for optimal secondary care management.
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