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A Mobile Phone Text Messaging Intervention to Manage Fatigue for People With Multiple Sclerosis, Spinal Cord Injury,
Kerri A Morgan1, Alex W K Wong2,3,4, Kim Walker1
1Program in Occupational Therapy, St. Louis School of Medicine, Washington University, St. Louis, MO, United States.
JMIR Formative Research
|December 21, 2022
Summary
This study developed a mobile health intervention using SMS text messages to help people with disabilities manage fatigue. The intervention, tailored with input from individuals with disabilities, showed high usability and relevance for improving self-management skills.
Area of Science:
- Digital Health Interventions
- Patient Activation
- Disability Research
Background:
- Fatigue significantly impacts daily functioning in individuals with disabilities.
- Existing fatigue management strategies and physician-provided information can be overwhelming.
- Patient activation, enhancing self-management skills, is crucial for addressing fatigue.
Purpose of the Study:
- To develop and test a mobile phone-based fatigue self-management intervention utilizing SMS text messaging.
- To target patient activation in individuals with multiple sclerosis, stroke, and spinal cord injury.
- To create a tailored, accessible intervention for fatigue management in diverse disability groups.
Main Methods:
- Intervention development involved evidence-based resources and a consumer advisory board (CAB) with representation from all disability groups.
- A four-step process included creating an SMS message library, expert and CAB review, digital platform integration, and CAB utility testing.
- Content was categorized into nine areas, and feedback guided message frequency (4 per week) and delivery over 12 weeks.
Main Results:
- SMS text messages received high ratings for clarity (3.5-5.0/5) and relevance (3.2-5.0/5) from CAB participants.
- Content was perceived as helpful and suitable for a mobile health approach.
- The intervention demonstrated high usability, with 83% of respondents providing the highest rating.
Conclusions:
- A systematic process for developing a fatigue self-management SMS intervention for persons with disabilities was established.
- This mobile health approach offers an alternative delivery model to enhance access to fatigue management information.
- The intervention is designed to deliver content aligned with the personalized needs of individuals with disabilities.
