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Patients' right to know: A scoping review.
Saija Inkeroinen1, Heli Virtanen1, Minna Stolt1,2
1Department of Nursing Science, University of Turku, Turku, Finland.
Journal of Clinical Nursing
|December 22, 2022
Summary
Patients’ right to know is a fundamental aspect of care. This review highlights the need for high-quality research to understand patient expectations and the realization of this right in nursing practice.
Area of Science:
- Nursing Ethics
- Patient Rights
- Health Information Disclosure
Background:
- Patients' right to know is a fundamental ethical principle in healthcare.
- Existing scientific evidence on this right from the patient's perspective requires comprehensive review.
Purpose of the Study:
- To analyze research evidence on patients' right to know from their perspective.
- To promote ethically high-quality nursing care.
- To identify future research directions in this area.
Main Methods:
- A scoping review was conducted using established frameworks (Arksey & O'Malley, PRISMA-ScR).
- Literature search in Ovid Medline, CINAHL, and Cochrane Library (June 2022).
- Included peer-reviewed, empirical studies on adult patients' right to know; analyzed using inductive content analysis and quality appraisal (Mixed Methods Appraisal Tool).
Main Results:
- 12 studies were selected from 2658 reports.
- Research primarily focused on patients' expectations and the realization of their right to know.
- Most studies had methodological limitations, particularly in instrumentation and risk of bias.
Conclusions:
- Evidence provides insight into patient expectations and the realization of the right to know and not to know.
- Future research requires novel approaches with high-quality methodological choices.
- Findings support nurses' ethical decision-making and patient education regarding knowledge issues.
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