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Consumer engagement in doctoral research - what difference does it make?

Leanne Rees1, Merryn Sherwood2, Nora Shields3

  • 1School of Allied Health, Human Services and Sport, La Trobe University, Melbourne, Australia. Leanne.Rees@latrobe.edu.au.

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Summary
This summary is machine-generated.

Consumer engagement in doctoral research involving individuals with spinal cord injury (SCI) enhanced data richness. Building trust and responsiveness fostered deep participation, benefiting the research process.

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Area of Science:

  • Health Sciences
  • Social Sciences
  • Disability Studies

Background:

  • Doctoral research benefits from diverse perspectives.
  • Consumer engagement is crucial for relevant and impactful research.
  • Understanding lived experiences, particularly with spinal cord injury (SCI), enriches research outcomes.

Purpose of the Study:

  • To evaluate the experience of consumer engagement in doctoral research.
  • To explore the dynamics and effectiveness of a Consumer Advisory Group.
  • To assess the impact of consumer input on research processes and findings.

Main Methods:

  • A qualitative reflective descriptive study design was employed.
  • A Consumer Advisory Group (seven participants with SCI) was established for a doctoral researcher.
  • Data collection included meeting transcripts, emails, researcher notes, and a consumer survey, analyzed using established frameworks.

Main Results:

  • Consumer engagement occurred throughout the research cycle, aligning with guiding principles.
  • Participation levels evolved from consultation to collaboration.
  • Key enablers included shared interest and rapport; challenges involved diverse perspectives and virtual platform use.

Conclusions:

  • Consumer engagement significantly informed doctoral research, adding nuanced perspectives and richness to data analysis.
  • Establishing trust and responsiveness were critical for achieving in-depth consumer participation.
  • This engagement model offers valuable insights for future research involving patient and public participation.