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Pediatric neuropalliative care

Zoe HarnEnz1, Paul Vermilion2, Audrey Foster-Barber1

  • 1Department of Neurology, University of California San Francisco, San Francisco, CA, United States.

Handbook of Clinical Neurology
|January 4, 2023
PubMed

Insights

Pediatric palliative care supports children with serious illnesses and their families. Neuropalliative care integrates neurology expertise for children with chronic neurological conditions, focusing on symptom management and shared decision-making.

Area of Science:

  • Pediatric Neurology
  • Palliative Care
  • Child Health

Background:

  • Pediatric palliative care enhances quality of life for children facing serious illnesses.
  • Children with neurological diseases are frequent recipients of pediatric palliative care.
  • Pediatric palliative care differs from adult practice due to longer illness durations, chronic fragility, and parental proxy decision-making.

Approach:

  • This chapter provides an overview of pediatric neuropalliative care.
  • Emphasis is placed on disease trajectories, symptom management, and communication strategies.
  • The integration of neurology expertise into palliative care for pediatric patients is highlighted.

Key Points:

  • Neuropalliative care addresses the unique needs of children with neurological conditions.
  • Effective symptom management is crucial for improving quality of life.
  • Open communication and shared decision-making with families are paramount.

Conclusions:

  • Pediatric neuropalliative care requires specialized approaches tailored to chronic neurological diseases.
  • Integrating palliative care principles into pediatric neurology practice is essential.
  • Supporting families through longitudinal relationships enhances care for children with serious illnesses.

Keywords:
CommunicationComplex chronic conditionsEnd of lifePediatric neurologyPediatric neuropalliative careSerious neurologic impairmentShared decision makingSymptom management

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