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Neonatal neuropalliative care

Sharla Rent1, Margarita Bidegain1, Monica E Lemmon2

  • 1Department of Pediatrics, Duke University School of Medicine, Durham, NC, United States.

Handbook of Clinical Neurology
|January 4, 2023
PubMed

Insights

Neonatal neuropalliative care supports infants with serious neurological conditions and their families. This approach focuses on communication, decision-making, and symptom management from antenatal diagnosis through the neonatal intensive care unit stay.

Area of Science:

  • Neonatology
  • Palliative Care
  • Neurology

Background:

  • Serious neurological conditions significantly impact neonates and their families.
  • Antenatal diagnosis and the neonatal period present unique challenges for care.
  • Existing care models may not fully address the complex needs of these patients.

Approach:

  • This chapter outlines a framework for neonatal neuropalliative care.
  • Focuses on three core domains: communication, prognostication, and symptom management.
  • Addresses care across different stages: antenatal, birth, and neonatal intensive care unit (NICU).

Key Points:

  • Family-centered communication and shared decision-making are crucial.
  • Accurate prognostication and ethical decision-making support care planning.
  • Effective pain and symptom management are essential for quality of life.

Conclusions:

  • Integrating neuropalliative care improves outcomes for neonates with life-limiting neurological conditions.
  • Special considerations are needed for end-of-life care, cultural contexts, and diverse practice settings.
  • Future research should guide the expansion of neuropalliative care in neonatal settings.

Keywords:
CommunicationEnd of lifeNeonatalNeurologyPalliative care

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