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A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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Coproduction with Autistic Adults: Reflections from the Authentistic Research Collective
Eloise Stark1,2,3, Dorota Ali1,4, Annalise Ayre1
1Authentistic Research Collective, University College London, London, United Kingdom.
Autism in Adulthood : Challenges and Management
|January 5, 2023
Summary
Coproduction, involving autistic and nonautistic individuals, is vital for inclusive research. Key elements for successful collaboration include clear communication, environmental adaptations, and fostering authenticity to support autistic strengths.
Area of Science:
- Autism research
- Participatory research methods
- Mental health interventions
Background:
- Coproduction ensures autistic perspectives are integrated into research.
- There is a need for guidance on effective autistic-nonautistic collaboration in research.
Purpose of the Study:
- To share reflections on a coproduction project involving autistic adults.
- To provide insights for future coproduction initiatives between autistic and nonautistic team members.
Main Methods:
- A collaborative project involving autistic and nonautistic individuals.
- Reflection on the coproduction process and its outcomes.
Main Results:
- Identified six key elements for successful coproduction: meaning of coproduction, ground rules/traffic light system, environmental adaptations, digital communication tools, encouraging authenticity, and supporting autistic strengths.
- Learned the importance of adapting environments and communication methods to suit diverse needs.
Conclusions:
- Optimizing coproduction with autistic people can enhance research relevance and impact.
- Future research should focus on refining practices for inclusive and effective coproduction in autism research.
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