A RE-AIM Evaluation of a Visualization-Based Electronic Patient-Reported Outcome System

Area of Science:

• Health Informatics
• Patient-Reported Outcomes
• Gerontology

Background:

• Healthcare systems often use proprietary tools for remote patient-reported outcomes (PROs) collection.
• Existing tools are frequently institution- and disease-specific, limiting broader application.
• There is a need for scalable, disease-agnostic systems for PRO collection.

Purpose of the Study:

• To evaluate a scalable electronic PRO (ePRO) system using the Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework.
• To assess the usability and adoption of the 'mi.symptoms' ePRO system, designed with gerontechnology principles.
• To identify factors influencing the implementation and maintenance of the ePRO system in a diverse population.

Main Methods:

• A single-arm study evaluated the 'mi.symptoms' ePRO system.
• The RE-AIM framework guided the evaluation of reach, effectiveness, adoption, implementation, and maintenance.
• Quantitative data were analyzed using descriptive statistics, and qualitative data used directed content analysis.

Main Results:

• The study reached 70 participants (median age 69, diverse demographics).
• Effectiveness showed 51% completion at 2 weeks and 36% overall.
• Adoption was driven by self-knowledge and perceived value; implementation depended on computer access and routine integration; maintenance was reinforced by perceived usefulness.

Conclusions:

• Sustained patient engagement in ePRO reporting remains a challenge.
• Freely available, scalable, disease-agnostic ePRO systems can enhance inclusivity in health data collection.
• The 'mi.symptoms' system demonstrates potential for wider adoption across diverse health systems and patient groups.