Parenting a Child with a Neurodevelopmental Disorder during the Early Stage of the COVID-19 Pandemic: Quantitative and Qualitative Cross-Cultural Findings
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Published on: November 7, 2020
Noemi Mazzoni1, Arianna Bentenuto1, Fabio Filosofi1
1Laboratory of Observation, Diagnosis and Educational (ODFLAB), Department of Psychology and Cognitive Science, University of Trento, 38068 Rovereto, Trento, Italy.
Insights
Parental stress worsened during COVID-19, impacting parents of children with neurodevelopmental disabilities (NDD). Disrupted therapy and externalizing behaviors increased distress, but parental efficacy offered resilience.
Area of Science:
- Child Psychology
- Neurodevelopmental Disorders
- Pandemic Mental Health
Background:
- COVID-19 pandemic disrupted family routines, exacerbating child symptoms and parental burden.
- Parental stress and mental health challenges were significantly linked to child symptomology.
- Understanding these impacts is crucial for supporting families with neurodevelopmental disabilities (NDD).
Purpose of the Study:
- To investigate how changes in child externalizing behavior, parental stress, and therapy discontinuity affected parental mental health during the COVID-19 pandemic.
- To compare these effects cross-culturally between European countries and the USA.
- To identify resilience factors mitigating psychological distress in parents of children with NDD.
Main Methods:
- Online survey administered to parents of children with NDD in Italy, Spain, and the USA.
- Quantitative analysis of perceived changes in child behavior, parental stress, and therapy.
- Qualitative analysis to explore contributing factors and resilience.
Main Results:
- Increased parental stress correlated with heightened parental psychological distress across cultures.
- Child externalizing behaviors indirectly impacted parental distress through increased parental stress.
- Discontinuity or lack of therapeutic activities significantly contributed to parenting burden.
Conclusions:
- Parental stress is a key factor in psychological distress for parents of children with NDD during pandemics.
- Therapeutic discontinuity poses a significant risk to parental well-being.
- Parental efficacy and adaptability are crucial resilience factors against psychological problems.
Abstract:
Research during the COVID-19 pandemic has shown a strong relationship between child symptoms, parental stress, and mental health challenges. The pandemic has changed family routines, worsening child symptomatology and parental burden. The aim of this study was to investigate how the magnitude of the perceived changes in child externalizing behavior, parental stress, and discontinuity of therapy-from before to during the COVID-19 pandemic-affected parental mental health during the pandemic. Moreover, we sought to compare these aspects cross-culturally between European countries and the USA. To these purposes, we asked Italian, Spanish, and U.S. parents of children with neurodevelopmental disabilities (NDD) to complete an online survey. Quantitative results showed that increased parental stress may have contributed to a worsening in parental psychological distress, regardless of culture. Moreover, they suggested an indirect effect of child externalizing behaviors on parents' psychological distress via parental stress. Qualitative analyses highlighted that the lack, or discontinuity, of therapeutic activities may have been one of the key contributors to parenting burden during the COVID-19 pandemic. Finally, qualitative results highlighted resilience factors that could have decreased the risk of psychological problems during the pandemic, such as a strong sense of parental efficacy and the ability to adapt to changing family dynamics.
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