Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
Silja Berg Kårstad1,2, Åse Bjørseth1, Johanna Lindstedt3
1Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7130 Trondheim, Norway.
Insights
Parents in an early intervention program for infants at high risk of cerebral palsy (CP) generally had balanced views of their child. However, many experienced stress, anxiety, or depression, impacting parent-infant interactions.
Area of Science:
- Developmental Psychology
- Clinical Psychology
- Pediatric Health
Background:
- Early intervention is crucial for infants at high risk of cerebral palsy (CP).
- Understanding parental coping, representations, and interactions is vital for effective support.
- The Small Step program in Norway targets infants at high risk for CP.
Purpose of the Study:
- To describe parental coping, representations, and parent-infant interactions within the Small Step early intervention program.
- To identify parental psychological well-being and relational dynamics in families with high-risk infants.
- To inform the development of family-centered interventions for early childhood development.
Main Methods:
- Included 11 infants (mean age 4.8 months) and 19 parents (10 mothers, 9 fathers).
- Assessed parental coping using the Parenting Stress Index-Short Form (PSI-SF) and Hospital Anxiety and Depression Scale (HADS).
- Evaluated parental representations with the Working Model of the Child Interview (WMCI) and parent-infant interactions via the Parent-Child Early Relational Assessment (PCERA).
Main Results:
- Parental PSI-SF and HADS scores were mostly within normal ranges.
- However, elevated symptoms of stress (26.7%), anxiety (52.6%), and depression (31.6%) were noted in parents.
- Most parents (73.7%) demonstrated balanced representations of their child; however, parent-infant interactions showed areas of concern, particularly in mutuality and reciprocity.
Conclusions:
- While most parents had balanced representations, a significant proportion experienced mental health challenges.
- Parent-infant interaction, especially dyadic mutuality, requires attention within early intervention programs.
- Findings support the development of more comprehensive, family-centered approaches for infants at high risk of CP.
Abstract:
The aim of this study is to describe parental coping, representations, and interactions during the time of inclusion in the Small Step early intervention program for infants at high risk of cerebral palsy (CP) in Norway (ClinicalTrials.gov: NCT03264339). Altogether, 11 infants (mean age 4.8 months, SD: 1.5) and their parents (mothers: n = 10, fathers: n = 9) were included. Parental coping was assessed using the Parenting Stress Index-Short Form (PSI-SF) and the Hospital Anxiety and Depression Scale (HADS). Parental representations and parent-infant interactions were assessed using the Working Model of the Child Interview (WMCI) and the Parent-Child Early Relational Assessment (PCERA). Parents' PSI-SF and HADS scores were within normal range; however, 26.7% showed symptoms of stress, 52.6% showed symptoms of anxiety, and 31.6% showed symptoms of depression above the cut-off. WMCI results indicate that 73.7% of the parents had balanced representations. For PCERA, the subscale Dyadic Mutuality and Reciprocity was of concern, while two other subscales were in areas of strength and three subscales in some concern areas. There were no differences between mothers and fathers. Most of the parents had balanced representations, some had mental or stress symptoms and many were struggling with aspects of the parent-infant interaction. This knowledge could be useful when developing more family-centered interventions.
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