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To Address Women's Health Inequity, It Must First Be Measured.

Kathryn Godburn Schubert1, Chloe E Bird2,3,4, Katy Kozhimmanil5

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Underfunded public health data systems must be reimagined to center equity for women of color and transgender individuals. A new data infrastructure can advance health justice for all under-represented communities.

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Area of Science:

  • Public Health
  • Health Equity
  • Data Science

Background:

  • Historical underfunding and marginalization of "women's health" research disproportionately affects women of color and transgender individuals.
  • The COVID-19 pandemic highlights critical gaps in public health data infrastructure.
  • Existing systems fail to adequately represent the diverse health needs and experiences of all populations.

Purpose of the Study:

  • To propose a blueprint for transforming the United States public health data infrastructure.
  • To center equity and elevate the health and well-being of under-represented communities.
  • To improve data collection, interpretation, and sharing for greater health justice.

Main Methods:

  • Conceptual framework development for a modernized data infrastructure.
  • Analysis of existing health data collection and dissemination practices.
  • Policy recommendations for equitable data governance.

Main Results:

  • A proposed model for a public health data infrastructure that prioritizes inclusivity.
  • Strategies for integrating data from diverse sources to capture a fuller health picture.
  • Emphasis on ethical data sharing and community engagement.

Conclusions:

  • Transforming public health data infrastructure is essential for achieving health justice.
  • Centering equity in data systems can address long-standing disparities.
  • A reimagined infrastructure offers an opportunity to improve health outcomes for marginalized groups.