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Updated: Aug 14, 2025
09:41
Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
Published on: July 19, 2019
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Exploring COVID-19 experiences for persons with multiple sclerosis and carers: An Australian qualitative study
Helen Correia1,2, Pamela Martin-Lynch1, Marcia Finlayson3
1College of Science, Health, Engineering and Education, Murdoch University, Murdoch, Western Australia, Australia.
Summary
The COVID-19 pandemic significantly impacted persons with multiple sclerosis (MS) and their carers, causing disruptions and emotional distress. The study highlights the need for enhanced support, acknowledging both challenges and the resilience of individuals with MS and their carers.
Area of Science:
- Qualitative research in health and social sciences.
- Patient and public involvement in research.
Background:
- The COVID-19 pandemic presented unprecedented challenges globally.
- Understanding the specific impacts on vulnerable populations like persons with multiple sclerosis (MS) is crucial.
- Carers of persons with MS also faced unique pandemic-related stressors.
Purpose of the Study:
- To explore the lived experiences of persons with MS and their carers during the COVID-19 pandemic.
- To identify challenges, impacts, and resilience strategies.
- To inform future support mechanisms.
Main Methods:
- A qualitative study employing interviews with persons with MS, carers, and MS service providers in Australia.
- Data collection included demographic and background information.
- Inductive iterative thematic analysis was used to analyze interview data.
Main Results:
- Participants reported significant pandemic-related disruptions to routines and services for persons with MS and carers.
- Emotional and mental health impacts, including anxiety and stress, were prevalent.
- Resilience was demonstrated through adaptation, new routines, and appreciation of telehealth, alongside challenges like increased demands for carers.
Conclusions:
- Persons with MS and carers require ongoing, tailored support to navigate pandemic impacts.
- Support strategies should address challenges while actively acknowledging and fostering resilience.
- Enhancing coping and adaptation mechanisms is vital for this population.
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