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Developmental Care for Hospitalized Infants With Complex Congenital Heart Disease: A Science Advisory From the

Amy Jo Lisanti, Karen C Uzark, Tondi M Harrison

    Journal of the American Heart Association
    |January 17, 2023
    PubMed

    Insights

    Infants with complex congenital heart disease often experience developmental delays. Early developmental care interventions are crucial for improving neurodevelopmental outcomes in this vulnerable population.

    Area of Science:

    • Pediatric Cardiology
    • Developmental Pediatrics
    • Neonatal Care

    Background:

    • Complex congenital heart disease (CCHD) is frequently associated with developmental disorders, disabilities, and delays.
    • Early identification and intervention are critical for mitigating long-term neurodevelopmental deficits in infants with CCHD.
    • Neonatal hospitalization following cardiac surgery presents a key window for implementing developmental support.

    Purpose of the Study:

    • To outline the significant burden of developmental challenges in infants with CCHD.
    • To define the potential neurodevelopmental and health benefits of specialized developmental care.
    • To identify critical research gaps in evaluating developmental care interventions for CCHD.

    Main Methods:

    • This science advisory synthesizes current knowledge and expert opinion.
    • It reviews existing literature on developmental outcomes in CCHD.
    • It identifies areas requiring further research and calls for action.

    Main Results:

    • Infants with CCHD face a high risk of developmental disorders, disabilities, and delays.
    • Developmental care holds promise for improving health and neurodevelopmental trajectories.
    • Significant gaps exist in research evaluating the efficacy of these interventions.

    Conclusions:

    • There is a critical need to prioritize research and implementation of developmental care for infants with CCHD.
    • Increased funding and hospital infrastructure are essential for supporting developmental care.
    • A focused, decade-long effort is required to advance neurodevelopmental outcomes in this population.

    Keywords:
    AHA Scientific Statementscongenital heart diseasedevelopmental carefamily‐centered careinfantneurodevelopment

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