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Internalized Stigma in Hidradenitis Suppurativa: A Multicenter Cross-Sectional Study
Aslı Bilgic1, Bilge Fettahlıoglu Karaman2, Duriye Deniz Demirseren3
1Department of Dermatology and Venereology, Faculty of Medicine, Akdeniz University, Antalya, Turkey.
Summary
Hidradenitis suppurativa (HS) patients experience significant internalized stigma, comparable to other chronic conditions. Factors like obesity and disease severity predict higher stigma, impacting healthcare access.
Area of Science:
- Dermatology
- Psychiatry
- Public Health
Background:
- Hidradenitis suppurativa (HS) imposes substantial physical, social, and psychological burdens.
- Internalized stigma, the acceptance of societal stereotypes about illness, remains understudied in HS.
Purpose of the Study:
- To assess the prevalence of internalized stigma in HS patients.
- To identify factors associated with internalized stigma in this population.
Main Methods:
- A multicenter, prospective, cross-sectional study involving 731 HS patients.
- Utilized the Internalized Stigma Scale (ISS), disease severity measures (Hurley staging, Physician Global Assessment), quality of life indices (DLQI, Skindex-16), and psychological assessments (BDI-II, VAS-pain).
Main Results:
- Mean ISS scores in HS patients were comparable to those in visible dermatological and psychiatric conditions.
- Significant correlations were observed between ISS and disease activity, quality of life, depression, and pain.
- Multivariate analysis identified obesity, family history, lower education/income, specific anatomical involvement (vulva/scrotum), and active treatment as independent predictors of high internalized stigma.
Conclusions:
- HS patients internalize societal negativity, potentially hindering healthcare access.
- Addressing internalized stigma is crucial for improving HS patient outcomes and healthcare quality, alongside disease management.
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