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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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A scoping review of parental values during prenatal decisions about treatment options after extremely premature birth

Angret de Boer1,2, Marieke de Vries3, Dirk-Jan Berken4

  • 1Department of Neonatology, Radboud University Medical Center, Amalia Children's Hospital, Nijmegen, The Netherlands.

Acta Paediatrica (Oslo, Norway : 1992)
|January 30, 2023
PubMed

Insights

Parental decisions about treating infants at the limit of viability involve complex factors like long-term outcomes and family impact. Understanding these perspectives aids professionals in supporting parents during critical prenatal choices.

Area of Science:

  • Neonatal medicine
  • Perinatal care
  • Bioethics

Background:

  • Prenatal decision-making for infants born at the limit of viability is complex.
  • Understanding parental values is crucial for effective professional support.

Purpose of the Study:

  • To synthesize existing literature on parental perspectives regarding prenatal treatment decisions for infants at the limit of viability.

Main Methods:

  • Comprehensive literature search across multiple databases (PubMed, Cochrane, Embase, CINAHL, PsycINFO, Web of Science) from 2010-2022.
  • Systematic review and thematic analysis of 17 selected studies.
  • Parental collaboration in theme finalization.

Main Results:

  • Key parental perspectives include infant's long-term outcomes, survival, neonatal treatment burden, family impact, religious beliefs, hope, responsibility, and the desire to do what is best.
  • Decision-making factors are multifaceted, ranging from clear considerations to ambiguous influences.
  • Identified perspectives highlight the complexity and emotional weight of these choices.

Conclusions:

  • Parental perspectives on neonatal treatment decisions at the limit of viability are diverse and complex.
  • Enhanced understanding of these perspectives can improve shared decision-making processes.
  • Personalization of prenatal counseling is essential for supporting parents effectively.
Abstract

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