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Investigating How People Who Self-harm Evaluate Web-Based Lived Experience Stories: Focus Group Study
Lizzy Winstone1, Becky Mars1,2, Jennifer Ferrar3
1Population Health Sciences, University of Bristol, Bristol, United Kingdom.
Web-based lived experience stories can support individuals with self-harm, offering motivation and distraction. However, age and authenticity influence their impact, with recovery narratives potentially demotivating older readers.
Area of Science:
- Mental Health Research
- Digital Health
- Qualitative Psychology
Background:
- Web-based content significantly impacts mental health, particularly self-harm.
- Lived experience stories are common online support tools for individuals seeking help.
Purpose of the Study:
- To understand how individuals who self-harm engage with and evaluate online lived experience stories.
- To explore the perceived benefits and drawbacks of these narratives.
Main Methods:
- Four online focus groups were conducted with 13 participants aged 16-40 with recent self-harm experience.
- Participants reacted to example stories and reflected on past encounters with similar content.
- Thematic analysis was used to interpret the qualitative data.
Main Results:
- Five key themes emerged: emotional impact of recovery stories, influence on help-seeking behaviors, reader identification with narrators, perceived authenticity, and the role of language and stereotyping.
- Stories of recovery were found to be motivating but could demoralize older individuals.
- Authenticity and relatable narratives were crucial for engagement.
Conclusions:
- Online lived experience stories offer valuable support for self-harm, potentially motivating readers and reducing urges.
- Narrative age, authenticity, and relatability are critical factors influencing effectiveness.
- Content creators and moderators should avoid stigmatizing language and consider age-appropriateness.
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