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Pediatric Ethics Consultation Services
Meaghann S Weaver1,2, Valerie K Shostrom3, Shiven Sharma4
1Pediatric Palliative Care.
Insights
Pediatric ethics consultation services (PECS) are present in 69% of children's hospitals, with freestanding children's hospitals more likely to have them. Further research is needed to address the one-third of hospitals lacking these vital services.
Area of Science:
- Pediatric healthcare ethics
- Hospital administration
- Clinical ethics services
Background:
- Guidelines recommend pediatric ethics consultation services (PECS).
- The prevalence of PECS in children's hospitals is largely unknown.
- This study quantifies PECS availability and examines associated hospital characteristics.
Purpose of the Study:
- To determine the prevalence of pediatric ethics consultation services (PECS) in children's hospitals.
- To compare the practice environments of children's hospitals with and without PECS.
- To identify factors associated with the presence of PECS.
Main Methods:
- Analysis of the 2020 Children's Hospital Association Annual Benchmark Report survey data.
- Determination of PECS presence in 144 children's hospitals across 50 states.
- Comparison of hospital characteristics between those with and without PECS.
Main Results:
- 69% of surveyed children's hospitals reported having ethics consultation services.
- Freestanding children's hospitals, academic medical centers, and those with palliative care, intensive care, and trauma services were more likely to have PECS.
- Hospitals with more staffed beds and those designated as federally qualified health centers or accountable care organizations were also more likely to offer PECS.
Conclusions:
- One-third of children's hospitals currently lack pediatric ethics consultation services (PECS).
- The presence of PECS is associated with larger, freestanding, academic children's hospitals with comprehensive specialized care programs.
- Further research is necessary to understand barriers to PECS implementation and improve access to these services.
Background And Objective:
Although guidelines call for the presence of pediatric ethics consultation services (PECS), their existence in children's hospitals remains unquantified. This study determined the prevalence of PECS in children's hospitals and compared the practice environments of those with versus without PECS.
Method:
The Children's Hospital Association Annual Benchmark Report survey from 2020 and PECS data were analyzed for the association of PECS with domains of care.
Results:
Two hundred thirty-one hospitals received survey requests, with 148 submitted and 144 reachable to determine PECS (62% response rate), inclusive of 50 states. Ninety-nine (69%) reported having ethics consultation services. Freestanding children's hospitals (28% of all hospitals) were more likely to report the presence of PECS (P <.001), making up 41% of hospitals with a PECS. The median number of staffed beds was 203 (25th quartile 119, 75th quartile 326) for those with PECS compared with 80 for those without (25th quartile 40, 75th quartile 121). Facilities with palliative care, higher trauma ratio, intensive care, and comprehensive programs were more likely to have PECS. Academic affiliation was associated with PECS presence (P <.001). Settings associated with skilled nursing facilities or long-term care programs were not more likely to have PECS. Hospitals designated as federally qualified health centers (P = .04) and accountable care organizations (P = .001) were more likely to have PECS.
Conclusion:
Although PECS function as formal means to clarify values and mitigate conflict, one-third of children's hospitals lack PECS. Future research is needed to understand barriers to PECS and improve its presence.
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