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Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention
Sabrin Rizk1,2, Vera C Kaelin1,3, Julia Gabrielle C Sim1
1Children's Participation in Environment Research Lab, College of Applied Health Sciences, University of Illinois Chicago, Chicago, Illinois, United States.
Applied Clinical Informatics
|February 1, 2023
Summary
This study explored stakeholder views on implementing the Young Children's Participation and Environment Measure (YC-PEM), an electronic tool for early intervention (EI). Findings show the YC-PEM is viable but needs interface improvements for wider scaling across EI programs.
Area of Science:
- Implementation Science
- Early Intervention
- Health Informatics
Background:
- Scaling evidence-based practices in early intervention (EI) programs is crucial for improving child development outcomes.
- The Young Children's Participation and Environment Measure (YC-PEM) is an electronic patient-reported outcome (e-PRO) tool designed to enhance EI services.
- Understanding stakeholder perspectives is key to successful implementation and scaling of new tools.
Purpose of the Study:
- To identify and prioritize early intervention (EI) stakeholders' perspectives on supports and barriers to implementing the YC-PEM e-PRO tool.
- To inform strategies for scaling the YC-PEM across multiple local and state EI programs.
- To assess the perceived value and challenges associated with using the YC-PEM in routine EI practice.
Main Methods:
- An explanatory sequential mixed-methods study (quantitative > qualitative) was conducted.
- Participants included EI families (n=6), service coordinators (n=9), and program leadership (n=7).
- Data collection involved semi-structured interviews and focus groups, analyzed using the Consolidated Framework for Implementation Research (CFIR) and thematic analysis.
Main Results:
- Stakeholders identified supports and barriers across CFIR domains: intervention characteristics, process, inner setting, and outer setting.
- All groups valued the YC-PEM for improving service plan development and family engagement.
- Key priorities included addressing linguistic diversity, user navigation, automated data capture, and fostering a positive implementation climate.
Conclusions:
- The YC-PEM e-PRO is an evidence-based and viable intervention for early intervention.
- Optimizing the YC-PEM interface is necessary before large-scale multisite trials.
- Successful implementation requires tailoring to diverse organizational readiness and resources.
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