Related Experiment Video

Updated: Aug 11, 2025

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.8K

Measuring Pediatric Palliative Care Quality: Challenges and Opportunities

Jackelyn Y Boyden1, Jori F Bogetz2, Emily E Johnston3

  • 1Department of Family and Community Health, School of Nursing (J.Y.B.), University of Pennsylvania, Philadelphia, Pennsylvania, USA.

Journal of Pain and Symptom Management
|February 3, 2023
PubMed

Insights

Improving pediatric palliative care (PPC) requires consistent quality measurement. This paper outlines challenges and strategies for enhancing PPC quality for children with serious illnesses and their families.

Area of Science:

  • Pediatric Palliative Care
  • Healthcare Quality Improvement
  • Serious Illness Care

Background:

  • Pediatric palliative care (PPC) programs exhibit significant variability in structure, staffing, funding, and patient volume, leading to inconsistent service delivery.
  • Enhancing the quality of care for children with serious illnesses and their families necessitates robust quality measurement integrated into clinical practice and aligned with healthcare policy.

Purpose of the Study:

  • To provide an overview of the current landscape of pediatric palliative care quality measurement.
  • To identify challenges, current initiatives, and future opportunities in measuring PPC quality.
  • To propose strategies for advancing high-quality PPC.

Main Methods:

  • Literature review and synthesis of current PPC quality measurement initiatives.
  • Analysis of challenges in implementing and standardizing PPC quality measures.
  • Development of strategic recommendations for improving PPC quality measurement infrastructure and policy integration.

Main Results:

  • Despite progress in PPC quality measurement initiatives, substantial challenges persist.
  • Existing initiatives like the Cambia Metrics Project and collaborative learning networks show promise but require further development.
  • A multi-pronged approach is essential for delivering high-quality PPC.

Conclusions:

  • Advancing high-quality PPC requires defining success, evaluating and adapting measures (addressing disparities), improving measurement infrastructure, gaining endorsement from quality organizations, and integrating measures into policy and funding.
  • Systematic quality measurement is crucial for ensuring equitable and effective pediatric palliative care for all children and families facing serious illness.

Keywords:
Pediatric palliative carequality improvementquality measurementquality of care

More Related Videos

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy09:18

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy

Published on: January 12, 2019

10.4K
Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools11:29

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Published on: June 20, 2020

9.2K

Related Concept Videos

Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K
Ethical Issues01:27

Ethical Issues

Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
1.1K
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.1K
Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
953
Ethical Dilemmas II01:30

Ethical Dilemmas II

Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
1.2K
Methods of Documentation VI: Case Management Model01:15

Methods of Documentation VI: Case Management Model

The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic...
612