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"My Autism Is My Own": Autistic Identity and Intersectionality in the School Context
Shana R Cohen1, Kohrissa Joseph2, Sarah Levinson3
1Department of Education Studies, University of California San Diego, La Jolla, California, USA.
Autistic students actively reclaimed their identities in school, reframing negative messages about autism. Educators should foster inclusive environments and positive autism perceptions for identity development.
Area of Science:
- Neurodevelopmental studies
- Identity formation research
- Educational psychology
Background:
- School experiences significantly influence identity development throughout childhood and adolescence, impacting adult life.
- Limited research explores autistic individuals' first-person perspectives on how school shapes autistic and intersecting identities.
- This study investigates school messages received by autistic individuals and their engagement with these messages to form identities.
Purpose of the Study:
- To examine how school environments and interactions shape autistic identity.
- To understand how autistic individuals engage with and respond to messages about their identity in school.
- To explore the intersection of autistic identity with other identities (e.g., race, gender) within the school context.
Main Methods:
- Qualitative interviews were conducted with ten U.S.-based autistic adolescents and adults (ages 15-35).
- Interviews focused on school experiences, interactions with teachers/peers, and identity formation.
- Data analysis employed a critical constructivist approach with grounded theory, ensuring trustworthiness through peer debriefing, reflexive journaling, memoing, and member checking.
Main Results:
- Autistic students received stigmatizing messages regarding their autism from teachers and peers, influenced by intersecting identities like race and gender.
- Following disclosure, teachers often viewed students narrowly through an autism lens.
- Participants actively resisted negative messages by reclaiming and reframing their autistic identity, embracing strengths, and controlling disclosure.
Conclusions:
- Schools convey powerful, often stigmatizing, messages about autism that impact identity.
- Autistic students actively reclaim and shape their identities to foster a positive, empowered sense of self.
- Educators must promote positive autism perceptions, build inclusive communities, and advocate for autistic representation to support autism-affirming messages.
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