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An Adapted Self-screening Tool for Peripartum Cardiomyopathy in Haiti
Cassandra Rene1, Mikerlyne Faustin1, Jerry Bonhomme2
1From the Robert Stempel College of Public Health & Social Work, Miami, FL.
Insights
This study adapted a peripartum cardiomyopathy (PPCM) self-assessment tool for Haitian Creole speakers. The culturally adapted measure helps women differentiate heart failure symptoms from normal pregnancy signs.
Area of Science:
- Cardiology
- Global Health
- Medical Translation
Background:
- Peripartum cardiomyopathy (PPCM) is more prevalent in developing nations like Haiti.
- A validated PPCM self-assessment tool exists for the US but requires cultural adaptation for Haiti.
- Existing tools do not account for the language, culture, and education of the Haitian population.
Purpose of the Study:
- To translate and culturally adapt the Fett PPCM self-assessment measure for Haitian Creole speakers.
- To create a PPCM screening tool suitable for the Haitian population.
Main Methods:
- Direct translation of the English Fett PPCM measure into Haitian Creole.
- Conducted four focus groups with medical professionals.
- Performed 16 cognitive interviews with a community advisory board to refine the translation and cultural adaptation.
Main Results:
- The adaptation incorporated culturally relevant cues for the Haitian population.
- Maintained the original measure's intended meaning and clinical utility.
- Developed a refined Haitian Creole version of the PPCM self-assessment tool.
Conclusions:
- The adapted instrument is suitable for use by auxiliary health providers and community health workers.
- The tool aids patients in distinguishing heart failure symptoms from normal pregnancy symptoms.
- The measure helps quantify the severity of potential heart failure indicators.
Background:
Peripartum cardiomyopathy (PPCM) is considered rare in the United States; however, the literature notes that the disease has a higher prevalence in developing countries such as Haiti. Dr. James D. Fett, a US cardiologist, developed and validated a self-assessment measure for PPCM in the United States to aid women to easily differentiate the signs and symptoms of heart failure from those related to a normal pregnancy. Although this instrument was validated, it lacks the adaptation necessary to account for the language, culture, and education of the Haitian population.
Objective:
The aim of this study was to translate and culturally adapt the Fett PPCM self-assessment measure for use among a Haitian Creole speaking population.
Methods:
A preliminary Haitian Creole direct translation was developed from the original English Fett self-test. A total of four focus groups with medical professionals and 16 cognitive interviews with members of a community advisory board were conducted to refine the preliminary Haitian Creole translation and adaptation.
Results:
The adaptation focused on incorporating cues that would be tangible and connected to the reality of the Haitian population while maintaining the intended meaning of the original Fett measure.
Conclusions:
The final adaptation provides an instrument suitable for administration by auxiliary health providers and community health workers to help patients distinguish symptoms of heart failure from symptoms related to normal pregnancy and further quantify the severity of signs and symptoms that might be indicative of heart failure.
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