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Mental Health of Caregivers of Children with Medical Complexity During COVID-19

Emmanuel Aryee1,2, James M Perrin3,4,5, Sandra Clancy3

  • 1Children's Wisconsin-Milwaukee Hospital, Milwaukee, WI.

Journal of Developmental and Behavioral Pediatrics : JDBP
|February 27, 2023
PubMed

Insights

Caregivers of children with medical complexity experienced worse mental health and higher financial burdens during the COVID-19 pandemic. Increased financial burden was linked to poorer mental health outcomes for these essential caregivers.

Area of Science:

  • Public Health
  • Psychology
  • Health Economics

Background:

  • Caregivers of children with medical complexity (CMC) often face significant challenges.
  • The COVID-19 pandemic exacerbated existing stressors for families, particularly impacting mental health and finances.

Purpose of the Study:

  • To investigate the relationship between mental health and financial burden among caregivers of CMC during the COVID-19 pandemic.

Main Methods:

  • A cross-sectional survey was conducted with 70 caregivers of CMC from April 2020 to April 2021.
  • Bivariate and multivariate linear regressions were used to analyze associations between caregiver mental health, demographics, child characteristics, and financial burden.

Main Results:

  • Caregivers reported significantly lower mental health scores and higher financial burden scores compared to reference populations.
  • Increased financial burden was significantly associated with lower caregiver mental health scores (p = 0.002).

Conclusions:

  • Caregivers of CMC experienced heightened mental health symptoms and financial burdens during the pandemic.
  • Financial assistance programs should consider financial burden and income to support these families.
  • Stakeholders should prioritize financial support to improve caregiver mental health.
Abstract

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