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The Quality and Readability of Online Patient Information on Positional Head Shape Conditions
Kristof S Gutowski1, Sarah A Applebaum1, Benjamin L Thomae1
1Division of Plastic Surgery, Ann & Robert H. Lurie Children's Hospital, Chicago, IL, USA.
Insights
Online information on infant head shape conditions often lacks quality and readability. Healthcare providers need to improve patient education resources to ensure families receive accurate, accessible medical information.
Area of Science:
- Pediatric Healthcare
- Health Informatics
- Medical Education
Background:
- Families increasingly seek online medical information for pediatric conditions.
- The legitimacy and quality of online health information are often misunderstood by users.
- Positional head shape conditions in infants are a common concern for parents.
Purpose of the Study:
- To evaluate the quality and readability of online information regarding infant positional head shape conditions.
- To identify gaps in online patient education that healthcare providers can address.
- To improve the accessibility and accuracy of health information for parents.
Main Methods:
- Searched Google for "flat head baby," "brachycephaly," and "plagiocephaly," reviewing the top 20 websites for each term.
- Assessed website quality using the DISCERN Instrument.
- Measured readability using Flesch-Kincaid Reading Grade Level (FKGL) and Flesch Reading Ease Score (FRES).
Main Results:
- Professional organizations offered the highest quality content (mean DISCERN score 56.3), while commercial sites had the lowest (36.6).
- Average readability was challenging, with a FKGL of 9.9 and FRES of 54.4.
- Hospital websites, though most readable, often provided lower quality information.
Conclusions:
- There is a significant lack of high-quality, easily understandable online health information for infant positional head shape conditions.
- Recommendations can be developed from this review to enhance online patient education materials.
- Improving online resources is crucial for pediatric healthcare providers to support informed families.
Objective:
Families increasingly use online resources to acquire medical information about their child's condition with little understanding of the legitimacy of the source of information or of the information itself. We evaluate the quality and readability of online information related to positional head shape conditions and identify unmet needs for healthcare providers to improve online patient education.
Design:
The search terms "flat head baby," "brachycephaly," and "plagiocephaly" were queried on the Google search engine and the first 20 websites for each were reviewed. Included websites were evaluated for quality using the DISCERN Instrument and readability using the Flesch-Kincaid Reading Grade Level (FKGL) and Flesch Reading Ease Score (FRES). Websites were categorized by upload source and results were compared using one-way ANOVA.
Results:
38 websites met inclusion criteria. There was no significant correlation between DISCERN score and Google search rank between the three search terms. Professional organizations provided websites with the highest mean DISCERN score (56.3) and commercial websites with the lowest score (36.6, P = .003), indicating "good" and "poor" quality content, respectively. Readability assessments showed an overall average FKGL of 9.9 and FRES of 54.4, suggesting "fairly difficult". Hospitals provided the most website results and tended to publish lower quality information, yet are the most readable.
Conclusions:
High quality websites written at an appropriate reading level for the general public are lacking. A review of online resources for positional head shape conditions can be used to derive recommendations to improve the content of online patient education for pediatric healthcare.
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