The Quality and Readability of Online Patient Information on Positional Head Shape Conditions

Kristof S Gutowski1, Sarah A Applebaum1, Benjamin L Thomae1

  • 1Division of Plastic Surgery, Ann & Robert H. Lurie Children's Hospital, Chicago, IL, USA.

Insights

Online information on infant head shape conditions often lacks quality and readability. Healthcare providers need to improve patient education resources to ensure families receive accurate, accessible medical information.

Area of Science:

  • Pediatric Healthcare
  • Health Informatics
  • Medical Education

Background:

  • Families increasingly seek online medical information for pediatric conditions.
  • The legitimacy and quality of online health information are often misunderstood by users.
  • Positional head shape conditions in infants are a common concern for parents.

Purpose of the Study:

  • To evaluate the quality and readability of online information regarding infant positional head shape conditions.
  • To identify gaps in online patient education that healthcare providers can address.
  • To improve the accessibility and accuracy of health information for parents.

Main Methods:

  • Searched Google for "flat head baby," "brachycephaly," and "plagiocephaly," reviewing the top 20 websites for each term.
  • Assessed website quality using the DISCERN Instrument.
  • Measured readability using Flesch-Kincaid Reading Grade Level (FKGL) and Flesch Reading Ease Score (FRES).

Main Results:

  • Professional organizations offered the highest quality content (mean DISCERN score 56.3), while commercial sites had the lowest (36.6).
  • Average readability was challenging, with a FKGL of 9.9 and FRES of 54.4.
  • Hospital websites, though most readable, often provided lower quality information.

Conclusions:

  • There is a significant lack of high-quality, easily understandable online health information for infant positional head shape conditions.
  • Recommendations can be developed from this review to enhance online patient education materials.
  • Improving online resources is crucial for pediatric healthcare providers to support informed families.
Abstract

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