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The Evaluation of Health Care Services for Children and Adolescents With Post-COVID-19 Condition: Protocol for a

Chiara Rathgeb1,2, Maja Pawellek1,2, Uta Behrends3

  • 1University Children's Hospital Regensburg, Hospital St. Hedwig of the Order of St. John, University of Regensburg, Regensburg, Germany.

JMIR Research Protocols
|March 3, 2023
PubMed

Insights

A new care network, Post-COVID Kids Bavaria (PoCo), is evaluating services for children with post-COVID-19 condition. This study assesses health care use and outcomes to optimize care for pediatric long COVID.

Area of Science:

  • Pediatric Health
  • Infectious Diseases
  • Healthcare Systems

Background:

  • Late effects of SARS-CoV-2 infection, or post-COVID-19 condition, affect children and adolescents.
  • Specialized care networks for pediatric post-COVID-19 are limited.
  • The Post-COVID Kids Bavaria (PoCo) network was established as a model project in Germany.

Purpose of the Study:

  • To evaluate healthcare services for children and adolescents with post-COVID-19 condition within the PoCo network.
  • To assess the effectiveness of a structured care approach for pediatric long COVID.

Main Methods:

  • A pre-post study design was employed.
  • 117 children and adolescents (up to 17 years) with post-COVID-19 condition were recruited from 16 outpatient clinics.
  • Data collected include healthcare use, treatment satisfaction, health-related quality of life, fatigue, postexertional malaise, and mental health via routine data, interviews, and questionnaires at multiple time points.

Main Results:

  • Study recruitment occurred between April and December 2022.
  • Interim analyses are planned.
  • Full data analysis will follow the completion of follow-up assessments.

Conclusions:

  • The study results will inform the evaluation of therapeutic services for pediatric post-COVID-19 condition.
  • Findings may identify strategies for optimizing care delivery for young individuals experiencing long COVID.
Abstract

Keywords:
CFS/MECOVID-19DSQ-PEMEQ-5DPCCPCSPROMISSDQadolescentcare networkchildchildren and adolescentshealth care serviceshealthcarehealthcare deliveryhealthcare servicehealthcare utilizationlong COVIDpatient reported outcomepediatricspost-COVIDpost–COVID-19 conditionpost–COVID-19 syndromeservice deliverytherapeutic service

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