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Assigning F-words as ingredients of interventions for children with cerebral palsy functioning at GMFCS IV and V: A
E Longo1, R Monteiro2, Á Hidalgo-Robles3
1Department of Physical Therapy, Federal University of Paraíba, João Pessoa, PB, Brazil.
Insights
Early identification and intervention are crucial for young children with Cerebral Palsy (CP) at GMFCS levels IV and V. This study outlines a scoping review protocol to identify key intervention components for non-ambulant CP, using the F-words framework.
Area of Science:
- Pediatric Rehabilitation
- Developmental Pediatrics
- Evidence-Based Practice
Background:
- Children with Cerebral Palsy (CP) at Gross Motor Function Classification System (GMFCS) levels IV and V require timely interventions.
- Implementing effective early interventions for non-ambulant children with CP presents significant challenges, particularly in low- and middle-income countries.
- The
- F-words for child development framework
- provides a structured approach to assessing child development outcomes.
Purpose of the Study:
- To detail the methodology for a scoping review investigating the components of early interventions for young children (0-5 years) with CP at high risk of being non-ambulant (GMFCS IV-V).
- To explore interventions based on the "F-words for child development framework" and identify both explicit and implicit intervention ingredients.
- To establish a protocol for a scoping review that will inform the implementation of the F-words framework in clinical practice.
Main Methods:
- A scoping review protocol was developed using expert panels and the "Population, Concept and Context" framework.
- The review will include studies published between 2001 and 2021 on non-surgical, non-pharmacological early interventions for children aged 0-5 with CP (GMFCS IV-V).
- Data extraction and quality assessment will be performed using established tools, including the AACPDM and MMAT.
Main Results:
- The study presents a protocol for identifying explicit (measured outcomes and ICF domains) and implicit (unintended or unmeasured intervention features) components of early interventions.
- The methodology aims to systematically analyze published studies to understand the 'ingredients' of effective interventions for non-ambulant CP.
Conclusions:
- The findings will guide the integration of the "F-words for child development framework" into early intervention strategies for young children with non-ambulant CP.
- This protocol provides a foundation for future research and clinical practice aimed at optimizing developmental outcomes for children with severe CP.
Introduction:
Children with Cerebral Palsy (CP) functioning at Gross Motor Function Classification System (GMFCS) levels IV and V require "on time" identification and intervention. Interventions offered continue to be a challenge, in high-, but even more so in middle-, and low-income countries.
Aim:
To describe the methods developed to explore the ingredients of published studies on early interventions in young children with cerebral palsy (CP) at highest risk of being non-ambulant based on the "F-words for child development framework" and the design of a scoping review exploring these ingredients.
Method:
An operational procedure was developed through expert panels to identify ingredients of published interventions and related F-words. After sufficient agreement among researchers was reached, a scoping review was designed. The review is registered in the Open Science Framework database. The "Population, Concept and Context" framework was used. Population: young children (0-5 years with CP and at highest risk for being non-ambulant (GMFCS levels IV or V); Concept: non-surgical and non-pharmacological early intervention services measuring outcomes from any ICF domain; Context: studies published from 2001 to 2021. After duplicated screening and selection, data will be extracted and quality will be assessed with the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and Mixed Methods Appraisal (MMAT) tools.
Results:
We present the protocol to identify the explicit (directly measured outcomes and respective ICF domains) and implicit (intervention features not explicitly intended or measured) ingredients.
Conclusion:
Findings will support the implementation of the F-words in interventions for young children with non-ambulant CP.
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