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Factors affecting implementation of patient-reported outcome and experience measures in a pediatric health system
Erin McCabe1,2, Sarah Rabi3, Sumedh Bele4
1School of Public Policy, University of Calgary, Calgary, Canada. erin.mccabe@ucalgary.ca.
Insights
Implementing patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in pediatric care involves challenges. This study identifies key factors and offers recommendations for successful integration into health systems.
Area of Science:
- Pediatric Healthcare
- Health Services Research
- Patient-Centered Care
Background:
- Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are crucial for enhancing pediatric clinical care.
- Integrating patient and family perspectives into healthcare evaluations is vital.
- Implementation of PROMs and PREMs in pediatric settings is complex and context-dependent.
Purpose of the Study:
- To identify barriers and facilitators to implementing PROMs and PREMs in pediatric settings.
- To provide strategic recommendations for integrating these measures within a pediatric health system.
Main Methods:
- Qualitative descriptive approach utilizing interview data.
- Explored experiences of PROMs and PREMs users across diverse pediatric settings.
- Study conducted within a single Canadian healthcare system.
Main Results:
- Five key factors influenced PROMs and PREMs implementation: measure characteristics, individual beliefs, administration methods, clinical workflow design, and incentives.
- 23 participants from various healthcare roles and pediatric populations were involved.
- Thirteen actionable recommendations for integrating PROMs and PREMs were developed.
Conclusions:
- Successful implementation and sustainability of PROMs and PREMs in pediatric healthcare face significant challenges.
- Findings offer valuable insights for planning and evaluating PROMs and PREMs implementation in pediatric settings.
Background:
The use of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in pediatric clinical practice can enhance clinical care and bring children and families' perspectives into evaluations of healthcare services. Implementing these measures is complex and requires a thorough assessment of the context of implementation The purpose of this study is to describe the barriers and facilitators to PROMs and PREMs implementation and to recommend strategies for implementing these measures in a pediatric health system.
Methods:
We used a qualitative descriptive approach to analyse data from interviews to understand the experiences of PROMs and PREMs users across different pediatric settings in a single Canadian healthcare system.
Results:
There were 23 participants representing a variety of roles within the healthcare system and pediatric populations. We found five main factors that affected implementation of PROMs and PREMs in pediatric settings: 1) Characteristics of PROMs and PREMs; 2) Individual's beliefs; 3) Administering PROMs and PREMs; 4) Designing clinical workflows; and 5) Incentives for using PROMs and PREMs. Thirteen recommendations for integrating PROMs and PREMs in pediatric health settings are provided.
Conclusions:
Implementing and sustaining the use of PROMs and PREMs in pediatric health settings presents several challenges. The information presented will be useful for individuals who are planning or evaluating the implementation of PROMs and PREMs in pediatric settings.
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