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Development and validation of a Systemic Sclerosis Health Literacy Scale
Meng Zhuang1,2, Cheng-Cheng Li1,2, Shan-Yu Chen3
1Department of Epidemiology and Biostatistics, School of Public Health, Anhui Medical University, Hefei, China.
Frontiers in Public Health
|March 13, 2023
Summary
A new health literacy scale for Systemic Sclerosis (SSc) patients was developed. This tool demonstrates good reliability and validity for assessing SSc patient health literacy and outcomes.
Area of Science:
- Rheumatology and Immunology
- Health Outcomes Research
- Psychometrics
Background:
- Limited health literacy is linked to poorer clinical outcomes in chronic diseases.
- Few studies have addressed health literacy specifically in Systemic Sclerosis (SSc) patients.
- No validated tool exists to measure health literacy in SSc.
Purpose of the Study:
- To develop and validate a specific health literacy scale for patients with Systemic Sclerosis (SSc).
Main Methods:
- A 428 SSc patient cohort was used for scale development and validation.
- Scale formulation involved concept formation, item pool creation, item screening, and reliability/validity evaluation.
- Classical measurement theory, factor analysis, and Cronbach's alpha were employed.
Main Results:
- A 30-item, 6-dimension Systemic Sclerosis Health Literacy Scale was developed.
- The scale demonstrated high reliability (Cronbach's alpha = 0.960) and validity (content validity = 0.983).
- The study population comprised predominantly middle-aged women.
Conclusions:
- The developed Systemic Sclerosis Health Literacy Scale is a reliable and valid instrument.
- This scale can effectively evaluate the health literacy levels of SSc patients.
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